COVID-19: An opportunity to engage African Americans and women in research on cardiovascular disease

• DOI: 10.1016/j.jnma.2023.07.007
• Publication Date: 2023-08-19T01:25:04Z
• Authors: Deborah L. Crabbe; Briana T. Richardson; Alice Hausman; Heather Gardiner
• Keywords: Clinical Research

African Americans (AA) have been disproportionately affected with the COVID-19 disease experiencing 30%-60% of deaths, while only making up 13% US population. Early data suggest that pregnant women and those cardiovascular (CVD) may experience worse outcomes severe coronavirus infection. There is an urgent need to incorporate AA female perspectives into design research on CVD complications related COVID-19.The goal this project was patients in developing priorities AN agenda COVID-19. Objectives included: (a) develop a strong, research-ready partnership capable executing PCOR, (b) creation set racial/sex-specific disparities which reflects AA's women; (c) long-term objective questions suitable for clinical using AHA Registry.The used principles active adult learning within framework capacity building build patient-centered vision needs. Different methods obtaining patient input were identify America Heart Association Quality Improvement Registry: focus groups town halls concerns interests vis-à-vis COVID research; narrative medicine collected compelling real-life, health stories; advisory council reviewed prioritized questions.Outcomes include replicable method patient-oriented Outputs establishment stakeholder training PCORI funded, PORTAL program resources; catalogue generated narratives experiences voice AAs women, created ready network, about