Representativeness of Participants in the Cancer Care Outcomes Research and Surveillance Consortium Relative to the Surveillance, Epidemiology, and End Results Program

• DOI: 10.1097/mlr.0b013e318222a711
• Publication Date: 2012-03-09T01:32:07Z
• Authors: Paul J. Catalano; John Z. Ayanian; Jane C. Weeks; Katherine L. Kahn; Mary Beth Landrum; Alan M. Zaslavsky; Jeannette Lee; Jane Pendergast; David P. Harrington
• Keywords: Adult; Male; Lung Neoplasms; Middle Aged; 16. Peace & justice; United States; 3. Good health; Interviews as Topic; 03 medical and health sciences; 0302 clinical medicine; Population Surveillance; Humans; Female; Health Services Research; Registries; Program Development; Colorectal Neoplasms; Aged; Program Evaluation; SEER Program

Background The research goals of the Cancer Care Outcomes Research and Surveillance (CanCORS) Consortium are to determine how characteristics beliefs patients, providers, health care organizations influence treatments outcomes individuals with newly diagnosed lung colorectal cancers. As CanCORS results will inform national policy, it is important know they generalize United States population these Design This study assessed representativeness cohort 10,547 patients cancer (LC) or (CRC) enrolled between 2003 2005. We compared (sex, race, age, disease stage) Surveillance, Epidemiology, End Results (SEER) 234,464 new onset cancers during recruitment period. sample well matched SEER Program for both In CanCORS, 41% LC/47% CRC were female versus 47% LC/49% in SEER. African American, Hispanic, Asian cases differed by no more than 5 percentage points slightly older, older 75 years 33.1% LC/37.3% 26.9% LC/29.4% also has a higher proportion early stage patients. found that was representative within specific regions map closely sites. Conclusions demonstrates successful enrolling demographically regions.