Reproductive Health Choices for Young Adults With Sickle Cell Disease or Trait

• DOI: 10.1097/nnr.0b013e3182a0316b
• Publication Date: 2013-08-30T16:24:53Z
• Authors: Diana J. Wilkie; Agatha M. Gallo; Yingwei Yao; Robert E. Molokie; Christine Stahl; Patricia E. Hersh...; Zhongsheng Zhao; Marie L. Suarez; Robert J. Labotka; Bonnye Johnson; Rigo Angulo; Veronica Angulo; Jesus Carrasco; David Shuey; Stephanie Pelligra; Edward Wang; Dennie T. Rogers; Alexis A. Thompson
• Keywords: Sickle cell trait; Trait

People with sickle cell disease (SCD) or trait (SCT) may not have information about genetic inheritance needed for making informed reproductive health decisions. CHOICES is a Web-based, multimedia educational intervention that provides options and consequences to help those SCD SCT identify implement an parenting plan. Efficacy of compared usual care must be evaluated.The purpose was compare immediate posttest effects versus attention-control (e-Book) on SCD-/SCT-related knowledge, intention, behavior.In randomized controlled study, we recruited subjects SCD/SCT from clinics, community settings, online networks data collected at sites convenient the 234 (n = 136) 98). Their ages ranged 18 35 years; 65% were women, 94% African American. Subjects completed measure behavior before immediately after intervention.Compared e-Book group, group had significantly higher average knowledge scores probability reporting plan avoid when pretest controlled. Effects intention planned significant. The showed significant change in their behavior, whereas did show but differed significantly.Initial efficacy findings are encouraging warrant booster sessions outcome follow-ups determine sustained actual persons SCD/SCT.