Haemophilia's Heartland: Pain, Poverty and Patient Care in Faisalabad

• DOI: 10.1111/hae.70009
• Publication Date: 2025-02-21T16:54:59Z
• Authors: Eesha Yaqoob; Shiza Aftab; Noor‐ul‐Ain Shah; Nimirta Sahitia; Saad Javed

ABSTRACT Introduction Haemophilia is an inherited bleeding disorder that causes significant pain and disability. A B are the most common, with HemA affecting more men being four times prevalent. Methods cross‐sectional study was conducted in Faisalabad, Pakistan, to assess severity haemophilia patients based on sociodemographic factors management approaches. Data were collected through structured interviews analysed using SPSS version 27.0, examining associations between variables severity. Results sample of 200 selected from 800 registered at a treatment centre (HTC) Faisalabad. All participants had severe haemophilia, 65.5% residing rural areas. Severe reported by 58% patients, higher prevalence among residents (35% vs. 22.5% urban, p = 0.004) those monthly income below Rs. 15,000 (21%, < 0.001). Plasma transfusion significantly reduced risk (OR 0.59, 95% CI: 0.42–0.83, 0.003), while self‐management methods increased it 1.79, 1.06–3.02, 0.03). Distance centres impacted severity, 21.5% living within 10–50 miles reporting pain. Management practices influenced patient outcomes ( Conclusion Patients face challenges owing factors, low limited access specialized care. Addressing these gaps requires early diagnosis, better multidisciplinary strategies. While geographic economic barriers considered, future research should include detailed data healthcare quality, assimilate longitudinal delve into links mental health, ease access.