Mapping the experiences of people with achalasia from initial symptoms to long‐term management

• DOI: 10.1111/hex.13160
• Publication Date: 2020-11-19T21:49:09Z
• Authors: Melika Kalantari; Amelia Hollywood; Rosemary Lim; Majid Hashemi
• Keywords: Adult; Male; Medicine (General); Achalasia; Middle Aged; chronic condition; 16. Peace & justice; rare condition; 3. Good health; Esophageal Achalasia; 03 medical and health sciences; process map; R5-920; 0302 clinical medicine; patient experiences; Humans; Female; Public aspects of medicine; RA1-1270; diet; Original Research Papers; Qualitative Research; Aged

Abstract Background Achalasia is a rare motility disorder affecting the oesophagus, which associated with range of symptoms and different treatment strategies. Currently, little known about people's experiences achalasia its management. This study aimed to understand people living achalasia, from initial onset long‐term Method qualitative explored journey outlined care pathway using process map. Ten female five male participants (age range: 40‐73) took part, all aspects their diagnosis, management were discussed. A map showing by separating condition into series steps was developed present in participants’ journey. The analysis involved discussing within research team. Results comprised 10 steps, occurred before after diagnosis. indicates that most managed on‐going through stress techniques dietary changes. Key issues highlighted managing misdiagnosis, delay diagnosis lack support achalasia. Conclusions novel exploring patients’ mapping Two distinct phases journeys identified: Areas this can provide basis for future research, particular behaviour change