Health data linkage research in Australia remains challenging

• DOI: 10.1111/imj.14244
• Publication Date: 2019-04-08T00:50:32Z
• Authors: Dharmenaan Palamu...; David W. Johnson; Carmel Hawley; Elaine Pascoe; Magid Fahim
• Keywords: Custodians; Linkage (software); Value (mathematics); Record Linkage; Population Health; Research Ethics; Genetic data

Abstract Data linkage is a valuable technique for uniting information from multiple sources that relates to the same person, place, family or event. Despite its value, establishing such linkages in Australia remains challenging. Existing policies are missed opportunity research and innovation engender negative attitude among researchers when considering data as means. Greater leadership Population Health Research Network cooperation custodians Human Ethics Committees necessary access optimally Australia’s enormous potential.