Iranian psoriasis registry: Research protocol and preliminary results of a pilot study

• DOI: 10.1111/jocd.16046
• Publication Date: 2023-11-06T10:35:22Z
• Authors: Reza M. Robati; Mohammad Reza Pou...; Zahra Sadeghi; Ghazal Mardani; Saba Hasanzadeh; Hamideh Moravvej; Soheila Nasiri; Nastaran Namazi; Sahar Dadkhahfar; Mehdi Gheisari; Mohammad Shahidi ...; Fariba Ghalamkarpour; Fahimeh Abdollahi...
• Keywords: Male; Adult; Humans; Psoriasis; Female; Pilot Projects; Registries; Iran; Child; 3. Good health

Abstract Background Psoriasis as a common cutaneous inflammatory disease affect many aspects of patients' life. Disease registries render it possible to collect valuable data regarding prevalence and burden well long‐term observations concerning therapeutic regimens. Methods This registry was designed for the ongoing systematic collection on patients with psoriasis at two referral dermatology centers in Iran. The pilot phase used identify obstacles application execution registration. Results A total 281 were registered mean age 42.02 years. duration 12.06 ± 10.90 years variety clinical presentations. There no significant difference between males females onset ( p = 0.53). Notably, 167 had children. Among them, 13 children psoriasis. gender affected parent did not possibility transmission child, seen sexes (P 0.569). Regarding treatment, 99.4% (n 280) topical agents, 52.3% 147) biologics, 60.9% 171) nonbiologic medications. Conclusion Clinical trials report efficacy safety limited study populations restricted time window, results may differ from general population. highlights importance registry‐based studies collecting analyzing longitudinal information. In terms complications such malignancies, cardiovascular events, serious adverse will help clinicians better recognize manage each disease.