Abstract P167: Patient Perspectives on Experience During Collection, Results Communication and Overall Impact of Patient-reported Outcomes in Heart Failure: A Mixed Methods Study

• DOI: 10.1161/circ.141.suppl_1.p167
• Publication Date: 2020-03-02T23:08:04Z
• Authors: Favel L Mondesir; Susan Zickmund; Patrick Galyean; Serena Yang; Grace Perry; John Spertus; Josef Stehlik
• Keywords: Thematic Analysis; Qualitative property

Background: Patient-reported outcome (PRO) assessments are commonly used in clinical heart failure (HF) trials and have been shown to be valid, reliable, sensitive measures of patients’ symptoms, function quality life, as well prognostic events. To routine care, they also need interpretable providers patients. Patients’ perspectives on PRO collection results communication not studied. Methods: We conducted a mixed methods study 24 ambulatory adult HF patients (50% men) who completed PROs part care at clinic. Study procedures included (1) qualitative telephone interviews (2) quantitative surveys following interviews. employed thematic analysis analyze code transcripts using an iterative coding process descriptive statistics the survey. Qualitative findings were purposefully linked results. Findings: Three themes analyses survey: 1. Utility data: Most participants noted that questionnaires useful tool better understand their health if discussed with them, provide additional information help improve treatment. Ninety-two % (22/24) strongly agreed or (SA/A) 8% (2/24) neutral completing changed improved health. Ninety-six (23/24) SA/A 4% (1/24) would make evaluation well-being more accurate. 2. Length frequency data collection: felt questionnaire length (13-29 questions 3-8 minutes average) implementation (at every visit) satisfactory. Sixty-three (15/24) 37% (9/24) maximum number should 5-15 >15, respectively. Eighty-three (20/24) 17% (4/24) time required for completion 5 10 >10 minutes, 3. Communication providers: them only once all had this discussion understood responses. Sixty-two (15/24), 21% (5/24) SA/A, disagreed effectively them. Conclusions: provided depth interpretability survey These indicate successful utility clinic, while highlighting frequent between Further use may lead cardiovascular prognosis HF.