Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients

• DOI: 10.1186/s12882-018-0901-x
• Publication Date: 2018-05-03T16:56:22Z
• Authors: L. Ebony Boulware; Patti L. Ephraim; Jessica Ameling; LaPricia Lewis-Boyer; Hamid Rabb; Raquel C. Greer; Deidra C. Crews; Bernard G. Jaar; Priscilla Auguste; Tanjala S. Purnell; Julio A. Lamprea-...; Tope Olufade; Luis Gimenez; Courtney Cook; Tiffany Campbell; Ashley Woodall; Hema Ramamurthi; Cleomontina A. Da...; Kingshuk Roy Chou...; Matthew R. Weir; Donna S. Hanes; Nae-Yuh Wang; Helene Vilme; Neil R. Powe
• Keywords: Nephrology

African Americans have persistently poor access to living donor kidney transplants (LDKT). We conducted a small randomized trial provide preliminary evidence of the effect informational decision support and financial assistance interventions on American hemodialysis patients' pursuit LDKT.Study participants were randomly assigned receive (1) Usual Care; (2) Providing Resources Enhance Patients' Readiness Make Decisions about Kidney Disease (PREPARED); or (3) PREPARED plus program. Our primary outcome was actions pursue LDKT (discussions with family, friends, doctor; initiation completion recipient medical evaluation; identification donor). also measured participants' attitudes, concerns, perceptions interventions' usefulness.Of 329 screened, 92 patients eligible Care (n = 31), 30), 31). Most reported helped their making renal replacement treatments (62%). However there no statistically significant improvements in among groups over 6 months. Further, utilized benefit.Findings suggest these may need be paired personal navigation services overcome key communication, logistical, barriers LDKT.ClinicalTrials.gov [ NCT01439516 ] [August 31, 2011].