Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol

• DOI: 10.1186/s12904-020-00642-w
• Publication Date: 2020-09-10T14:02:09Z
• Authors: Janneke van Roij; Myrte Zijlstra; Laurien Ham; Linda Brom; Heidi Fransen; Art Vreugdenhil; Natasja Raijmakers; Lonneke van de Po...; ; Art Vreugdenhil; Maggy Youssef-ELSoud; Geert-Jan Creemers; Ben van den Borne; Wouter de Jong; Arnold Baars; Marieke van den B...; Evelien Kuip; René Bunnik; Mathijs Hendriks; Caroline Mandigers; Jean-Paul van Basten; Vivian van Kampen...; Philo Werner; Lia van Zuylen; Alexander de Graeff; Anne van Lindert; Marcel Soesan; Jarmo Hunting; Arno Smals; Linda van de Winkel; Gerben Stege; Liese Verhaert; Natascha Peters; Manon Pepels; Tineke Smilde; Peter Nieboer; Sander de Hosson; Marien den Boer; Cordula Pitz; Rick Heyne; Manuel Tjin-A-Ton; Annemieke van der...; Paul van den Berg; Frans Krouwels; Lobke van Leeuwen...; Femke van der Meer; Allert Vos; Gerrit Jan Veldhuis; Boelo Poppema; Martine Thijs-Visser; Roxane Heller-Baan; Marjolein van Laren; Karen Maassen van...; Gea Douma; Jeroen Kloover; Dirkje Sommeijer; Lemke Pronk; Ellen Janssens - ...; Lilly-Ann van der...; Emma Hafkamp; Henk Codrington; Svitlana Tarasevych; Aart van Bochove; Annemieke van der...; Jaap de Boer; Geraldine Vink
• Keywords: Pain medicine; End-of-Life Care

Abstract Background Palliative care is becoming increasingly important because the number of patients with an incurable disease growing and their survival improving. Previous research tells us that early palliative has potential to improve quality life (QoL) in advanced cancer relatives. According limited on Netherlands, relatives find current suboptimal. The aim eQuiPe study understand experienced (QoC) QoL further care. Methods A prospective longitudinal observational cohort conducted among Patients receive a questionnaire every 3 months regarding QoC during trajectory. Bereaved final 6 after patients’ death. Data from questionnaires are linked detailed clinical data Netherlands Cancer Registry (NCR). By means descriptive statistics we will examine our population. Differences between subgroups changes over time be assessed while adjusting for confounding factors. Discussion This first prospectively longitudinally explore simultaneously. provide population-based information including time. Results inform how Trial registration NL6408 ( NTR6584 ). Registered Register June 30, 2017.