The OncoLifeS data-biobank for oncology: a comprehensive repository of clinical data, biological samples, and the patient’s perspective

• DOI: 10.1186/s12967-019-2122-x
• Publication Date: 2019-11-14T15:03:14Z
• Authors: Grigory Sidorenkov; Janny Nagel; Coby Meijer; Jacko J. Duker; Harry J. M. Groen; Gyorgy B. Halmos; Maaike H. M. Oonk; Rene J. Oostergo; Bert van der Vegt; Max J. H. Witjes; Marcel Nijland; Klaas Havenga; John H. Maduro; Jourik A. Gietema; Gertruida H. de Bock
• Keywords: Oncology; Quality of life; Male; Context (language use); Medical Oncology; General Biochemistry, Genetics and Molecular Biology; Imaging; Database; 03 medical and health sciences; Quality of life (healthcare); 0302 clinical medicine; Internal medicine; Neoplasms; Genetics; Humans; Biobank; Biological Specimen Banks; Cancer survivor; Data collection; Perspective (graphical); R; Methodology; Cancer; Proteins; General Medicine; Middle Aged; Biobank; 3. Good health; Databases as Topic; Radiological weapon; Medicine; Female

Abstract Background Understanding cancer heterogeneity, its temporal evolution over time, and the outcomes of guided treatment depend on accurate data collection in a context routine clinical care. We have developed hospital-based data-biobank for oncology, entitled OncoLifeS ( Oncological Life Study: Living well as survivor ), that links with preserved biological specimens quality life assessments. The aim this study is to describe organization development research. Results enrolled 3704 patients aged ≥ 18 years diagnosed cancer, which 45 hereditary breast-ovarian (70% participation rate) October 24th, 2019. average age 63.6 ± 14.2 1892 (51.1%) are female. following collected: details, comorbidities, lifestyle, radiological pathological findings, long-term outcomes. also collect store various biomaterials information from Conclusion Embedding care can ensure high-quality data. Moreover, inclusion longitudinal allows us incorporate patients’ perspectives imaging provides an opportunity analyzing raw using artificial intelligence (AI) methods, thus adding new dimensions collected