Facilitating public and patient involvement in basic and preclinical health research

• DOI: 10.1371/journal.pone.0216600
• Publication Date: 2019-05-14T17:35:48Z
• Authors: James Maccarthy; Suzanne Guerin; Anthony G. Wilson; Emma R. Dorris
• Keywords: Public Involvement; Thematic Analysis

Involving patients in research broadens a researcher's field of influence and may generate novel ideas. Preclinical is integral to the progression innovative healthcare. These are not patient-facing disciplines implementing meaningful public patient involvement (PPI) can be challenge. A discussion forum thematic analysis identified key challenges for preclinical researchers. In response we developed "PPI Ready" planning canvas. For contemporaneous evaluation involvement, psychometric questionnaire an open source tool its were developed. The measures information, procedural quality assessment. Combined with tool, researchers notified if unsatisfactory any these areas. easy use adapts test into format familiar scientists. Designed used iteratively across project, it provides simple reporting grade document satisfaction trend over lifecycle.