Sustaining the National Spinal Cord Injury Registry of Iran (NSCIR-IR) in a Regional Center: Challenges and Solutions

• DOI: 10.18502/ijph.v49i4.3181
• Publication Date: 2020-06-16T06:08:17Z
• Authors: Zahra AZADMANJIR; Zahra MOHTASHAM-A...; Seyed-Mahdi ZIABARI; Leila KOCHAKINEJAD; Hamid HAIDARI; Mina MOHSENI; Hadis SABOUR; Zahra KHAZAEIPOUR; Mahdi SHARIF-ALHO...; Zahra GHODSI; Abbas AMIRJAMSHIDI; Farshad AKBARZADEH; Kazem ZENDEHDEL; Amir AZARHOMAYOUN; Khatereh NAGHDI; Gerard OREILLY; Ellen MERETE; Alexander R VACCARO; Edward C BENZEL; Seyed Behzad JAZA...; Vafa RAHIMI-MOVAGHAR
• Keywords: Thematic Analysis; Identification

The National Traumatic Spinal Cord Injury Registry in Iran (NSCIR-IR), was implemented initially three hospitals as a pilot phase from 11 Oct 2015 to 19 Jun 2016 and has been active eight centers 2016. Poursina Hospital, trauma care referral center Rasht, Guilan Province of is one the registry sites, involved registering eligible patients since 1 Jan This study aimed identify challenges solutions for sustaining NSCIR-IR regional center.This mixed-methods study. For quantitative analysis, retrospective observational design used measure case capture or identification rate, mapping cases against those inclusion amongst register hospital admissions. qualitative component, data collected using focus group discussions semi-structured interviews, followed by thematic analysis.From 24 2018, proportion (case rate) 17%. median time between entry system 30.5 d (range: 2 193 d). Thematic analysis identified lack trained human resources most important cause low rate delay completion.Recruitment education increase are needed improve capture, timeliness input sustainability participating site.