The Ethical Imperative of Inclusivity in CBPR: Shared Experience of Science Shop Projects of InSPIRES Consortium

• DOI: 10.20944/preprints202503.1499.v1
• Publication Date: 2025-03-24T01:03:16Z
• Authors: Maria Kabbage; Jacqueline Tilley; Jihenne Ben Aissa...; Hicham Ben Hassine; Anne-Sophie Gresle; Irene Jimeno Maroto; Sonia Maatoug; Sonia Abdelhak; María-Jesus Pinazo

Science Shops (SSs) represent a Community-Based Participatory Research (CBPR) model that fosters collaboration between community organizations and research institutions. This highlights the growing importance of ethics in such projects. The study aims to identify analyse ethical challenges encountered during implementation Shop projects within InSPIRES consortium. Eight pilot conducted by were selected for qualitative assessment practices CBPR. Semi-structured interviews with SS coordinators, principal investigators, Civil Society Organization (CSO) partners. Findings revealed high level participation from CSOs six eight projects, pri-marily participant recruitment. However, scientific questions originating these or-ganizations adopted only two indicating limited involvement re-search process. Regarding consent, three institutions adapted consent forms vulnerable participants. Data results shared academic partners four formal partnership agreements established SSs. For successful addressing community-driven research, all must agree on formal, inclusive, participatory process, including well-structured plan data sharing dissemination. These findings offer guidance future CBPR initiatives.