IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey

• DOI: 10.2196/49910
• Publication Date: 2024-05-02T14:00:37Z
• Authors: Ismay A E de Beijer; Selina R van den ...; Eliana Charalambous; Giorgio Cangioli; Julia Balaguer; Edit Bardi; Marie Alfes; Adela Cañete Nieto; Marisa Correcher; Tiago Pinto da Costa; Alexander Degelse...; Vanessa Düster; Anna-Liesa Filbert; Desiree Grabow; Gerald Gredinger; Hannah Gsell; Riccardo Haupt; Maria van Helvoirt; Ruth Ladenstein; Thorsten Langer; Anja Laschkolnig; Monica Muraca; Saskia M F Pluijm; Jelena Rascon; Günter Schreier; Zuzana Tomášikova; Florian Trauner; Justas Trinkūnas; Kathrin Trunner; Anne Uyttebroeck; Leontien C M Kremer; Helena J H van de...; Catherine Chronaki
• Keywords: eHealth; Digital Health

Background To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of Survivorship Passport (SurPass) has been invented. Within European PanCareSurPass project, semiautomated interoperable SurPass (version 2.0) will be optimized, implemented, evaluated at 6 LTFU centers representing countries 3 distinct health system scenarios: (1) national electronic information systems (EHISs) in Austria Lithuania, (2) regional or local EHISs Italy Spain, (3) registries hospital-based Belgium Germany. Objective We aimed to identify describe barriers facilitators implementation concerning semiautomation data input, interoperability, protection, privacy, cybersecurity. Methods IT specialists from participated a semistructured digital survey focusing on IT-related implementation. used fit-viability model assess compatibility feasibility integrating into existing EHISs. Results In total, 13/20 (65%) invited participated. The main all scenarios related input interoperability included unaligned EHIS infrastructure use frameworks international coding systems. protection privacy cybersecurity pseudonymization personal retention. According model, first scenario provides best fit implementation, followed by second third scenarios. Conclusions This study essential insights influencing factors that need considered when implementing clinical practice. recommend adoption Health Level Seven Fast Healthcare Interoperability Resources security measures such as encryption, pseudonymization, multifactor authentication protect where applicable. sum, this offers practical solutions