Developing a Decision Aid to Facilitate Informed Decision Making About Invasive Mechanical Ventilation and Lung Transplantation Among Adults With Cystic Fibrosis: Usability Testing (Preprint)

• DOI: 10.2196/preprints.21270
• Publication Date: 2020-06-15T15:35:36Z
• Authors: Katherine L Daube...; Melissa Basile; D'Arcy King; Jennifer Polo; Karina Calise; Sundas Khan; Jeffrey Solomon; Daniel Dunne; Negin Hajizadeh
• Keywords: Think aloud protocol

<sec> <title>BACKGROUND</title> Cystic fibrosis (CF) is a life-limiting genetic disease that causes chronic lung infections. We developed an internet-based decision aid (DA) to help patients with CF make better informed decisions regarding treatments and advance care planning. built the DA around two major treatment decisions: whether have transplant agree invasive mechanical ventilation (intubation). </sec> <title>OBJECTIVE</title> This study aims conduct usability testing of InformedChoices among key stakeholder groups. <title>METHODS</title> performed patient needs assessment using &lt;i&gt;think-aloud&lt;/i&gt; CF, their surrogates, clinicians. &lt;i&gt;Think-aloud&lt;/i&gt; participants provided feedback while navigating DA, after viewing, they answered surveys. Transcripts from sessions survey results were categorized into common, generalizable themes optimizations for improving content, comprehension, navigation. assessed ease use (System Usability Scale) also participants’ perceptions overall tone, emphasis on emotional reactions level detail, usefulness information making about either intubation or transplantation, including how well understood able apply it own decision-making process. DA’s navigation, esthetics, complete series tasks (eg, locating specific in interactive survival estimates calculator) ensure website was easy navigate during clinic-based planning discussions. <title>RESULTS</title> A total 12 3 sites enrolled March 9 August 30, 2018, testing: 5 clinicians (mean age 48.2, SD 12.0 years), adults 2 family surrogate caregivers people 38.8, 10.8 years). Among participants, average System Scale score 88.33 (&lt;i&gt;excellent&lt;/i&gt;). analysis identified themes: functionality, visibility content usefulness. Areas improvement included reducing repetition, enhancing changing flow. Several changes improve recommended, adding alternatives childbearing, such as adoption surrogacy. On basis responses, we found navigation site clinicians, patients, surrogates who participated testing. <title>CONCLUSIONS</title> revealed areas potential improvement. Testing yielded positive feedback, suggesting future success. Integrating before implementation should lead greater adoption.