Long-Term Occupational Consequences for Families of Children With Type 1 Diabetes: The Mothers Take the Burden

• DOI: 10.2337/figshare.16689370.v1
• Publication Date: 2021-10-25T18:21:45Z
• Authors: Andrea Dehn-Hinde...; Heike Saßmann; Verena Berndt; Torben Biester; Bettina Heidtmann; Norbert Jorch; Su-Jong Kim-Dorner; Katja Konrad; Eggert Lilienthal; Nicole Nellen-Hel...; Andreas Neu; Ralph Ziegler; Karin Lange
• Keywords: Male; Parents; 0301 basic medicine; Mothers; 3. Good health; Fathers; 03 medical and health sciences; Diabetes Mellitus, Type 1; Mental Health; 0302 clinical medicine; Caregivers; Cost of Illness; Child, Preschool; Germany; Surveys and Questionnaires; Humans; Female; Child

<b>OBJECTIVE</b> <p>To investigate the occupational and financial consequences for parents following onset of type 1 diabetes in their child. </p> <p><b>RESEARCH DESIGN AND METHODS</b> <p>A questionnaire assessing situations before first year after was distributed to all families with a child ≤14 years age at diagnosis duration least 12 months nine German pediatric centers. <p><b>RESULTS</b></p> <p>Data 1,144 children (mean 6.7 (3.6) years, 46.5% female) were obtained. Mothers’ status reflected paid working hours significantly reduced child's (<i>P</i> < 0.001). Overall, 15.1% mothers stopped working, 11.5% hours. Mothers preschool particularly affected. Fathers’ hardly changed = 0.75). Nearly half (46.4%) reported moderate severe losses. Compared an earlier similar study 2003, significant negative burden on remain unchanged 2018 0.59 & 0.31, respectively).</p> <p><b>CONCLUSIONS</b></p> <p>Mothers young newly diagnosed experienced situation. This inequality can have long-term mental health future economic There is urgent need action reduce provide professional, social, regulatory support especially diabetes.