A5054948333- Patient-Provider Communication in Healthcare
- Cancer survivorship and care
- Mental Health and Patient Involvement
- Healthcare Systems and Technology
- Palliative Care and End-of-Life Issues
- Cancer Risks and Factors
- Health Policy Implementation Science
- Childhood Cancer Survivors' Quality of Life
- Interprofessional Education and Collaboration
- Empathy and Medical Education
- Metabolism, Diabetes, and Cancer
- Patient Satisfaction in Healthcare
- Conflict Management and Negotiation
- Health Systems, Economic Evaluations, Quality of Life
- Lymphatic System and Diseases
- Family Support in Illness
- Ethics in Clinical Research
- Patient Dignity and Privacy
- Ethics in medical practice
- Public Relations and Crisis Communication
- Electronic Health Records Systems
Aarhus University Hospital
2017-2025
Aarhus University
2017-2024
Central Denmark Region
2021-2022
The interest in patient and public involvement (PPI) health research is increasing. However, the experience knowledge of PPI throughout entire process especially analysis are limited. We explored ways to embrace perspectives patients a process, impact challenges our collaboration has had on patients, researchers, outcomes.This an explorative single case study Danish, clinical, controlled intervention trial nested fidelity included herein. Five representatives with metastatic melanoma were...
The value of using real-time patient-reported outcome (PRO) measures in cancer communication has gained attention both the clinic and research. Despite this, no internationally accepted guidelines or training programs for clinicians on how to engage patient-centred based PROs exist. Lack may complicate implementation systematic use clinic. We aimed develop a short feasible manual session PRO-based dialogue rooted communication, coined PROmunication.PROmunication was implemented two studies...
Abstract Background Patient and public involvement in health-related research is a new discipline Denmark. In 2021, national conference titled 'Patient Public Involvement Complex Intervention Research' provided forum for discussion between patient partners, researchers clinicians on involving patients as partners complex intervention research. Methods We aimed to describe specific challenges initiatives partner order develop recommendations creating successful partnerships Through...
Abstract Background Many patients with metastatic breast cancer can live relatively long lives but are challenged by treatment- and cancer-related side effects such as weight gain, physical deconditioning, reduced quality of life, possibly affecting survival. In particular, endocrine treatments associated an increased risk gain adverse metabolic effects. There is a need for interventions to prevent among disseminated cancer. Exercise found be effective in improving health, body composition...
Although interest in Patient and Public Involvement health-related research is growing, there seems to be a lack of guidance supporting researchers deciding on methods levels for throughout the process. Furthermore, numerous definitions, methods, frameworks make it challenging new this field decide most appropriate approach their project.This study aimed develop test approaches, levels, engaging patient partners research. A group 11 participated six workshops guidance. The feasibility...
Background With increased survival among patients with metastatic melanoma and limited time health care providers, are expected to assume a more active role in managing their treatment care. Activated have the knowledge, skills, confidence make effective solutions self-manage health. The use of patient-reported outcomes (PRO) could potential enhance patient activation. However, PRO-based interventions that facilitate an activation lacking warranted.Material methods In this prospective...
Healthcare research emphasises involvement of patients in the process, recognizing that this can enhance relevance, quality, and implementation research. This article highlights need for more systematic planning to successfully involve projects provides guidance on key aspects researchers should consider involving The accentuates importance establishing clear frameworks guidelines promote transparency facilitate implementation.
This study explores how a Danish nurse-led program designed to provide support families where mothers are affected by breast cancer is experienced the women attending and nurses organizing it. Their experiences insights into program's impact potential areas of improvement inform future interventions targeting well-being this specific population.The involved data collected through qualitative research. An observational intervention was conducted development an interview guide for...
Shared decision making in healthcare is a fundamental right for patients. Healthcare professionals' perception of their own abilities to enable shared crucial implementing within service. IcanSDM (I can making) brief measure investigate approaches practices. It was developed Canada with French and English versions, recently translated into German. This study aims adapt the Danish-speaking professionals, evaluate its psychometric properties. Cultural adaptation translation based on Beaton et...