A5067560109- Health Systems, Economic Evaluations, Quality of Life
- Geriatric Care and Nursing Homes
- Dementia and Cognitive Impairment Research
- Healthcare cost, quality, practices
- Interprofessional Education and Collaboration
- Palliative Care and End-of-Life Issues
- Patient Satisfaction in Healthcare
- Pharmaceutical Practices and Patient Outcomes
- Patient-Provider Communication in Healthcare
- Mental Health and Patient Involvement
- Mental Health and Psychiatry
- Chronic Disease Management Strategies
- Clinical practice guidelines implementation
- Intergenerational Family Dynamics and Caregiving
- Health, psychology, and well-being
- Health Policy Implementation Science
- Nursing Roles and Practices
- Pharmacy and Medical Practices
German Center for Neurodegenerative Diseases
2021-2025
People with dementia often have various unmet care needs across physical, psychological, environmental, and social domains. There's a need to explore the association between domains of characteristics people dementia. The aim this paper was describe met among community-dwelling living dementia, focusing on home environment, areas, identify sociodemographic, clinical, health-related parameters associated needs. We analyzed InDePendent trial's baseline data N = 417 Camberwell Assessment Needs...
Abstract INTRODUCTION The aim of this study was to analyze discrepancies between self‐ and proxy‐rated health‐related quality life (HRQoL), measured with the EuroQol 5 Dimension Level survey (EQ‐5D‐5L), in people living dementia (PlwD) their caregivers on an individual response level. METHODS EQ‐5D‐5L, sociodemographic clinical data were obtained from baseline n = 174 dyads a cluster‐randomized, controlled intervention trial. Self‐ EQ‐5D‐5L health profiles evaluated terms distribution...
Long-term evidence for the effectiveness and cost-effectiveness of collaborative dementia care management (CDCM) is lacking.
A redistribution of tasks between specialized nurses and primary care physicians, i.e., models advanced nursing practice, has the potential to improve treatment growing number people with dementia (PwD). Especially in rural areas limited access physicians specialists, these might PwD's quality life well-being. However, such are not available Germany regular healthcare. This study examines acceptance, safety, efficacy, health economic efficiency an practice model for PwD setting Germany.
Background: Low-value care (LvC) is defined as unlikely to provide a benefit the patient regarding patient’s preferences, potential harms, costs, or available alternatives. Avoiding LvC and promoting recommended evidence-based treatments, referred high-value (HvC), could improve patient-reported outcomes for people living with dementia (PwD). Objective: This study aims determine prevalence of HvC in associations patients’ quality life hospitalization. Methods: The analysis was based on data...
This study aimed to analyze the impact of low-value medications (Lvm), that is, unlikely benefit patients but cause harm, on patient-centered outcomes over 24 months.This longitudinal analysis was based baseline, 12 and months follow-up data 352 with dementia. The Lvm health-related quality life (HRQoL), hospitalizations, health care costs were assessed using multiple panel-specific regression models.Over months, 182 (52%) received at least once 56 (16%) continuously. significantly increased...
The healthcare needs of People living with Dementia (PlwD) (such as Alzheimer's disease) are often unmet. Information about the community-dwelling PlwD and their association sociodemographic clinical characteristics is needed to fill knowledge gap regarding factors influencing unmet among conduct a comprehensive assessment develop tailored interventions.
Background: Collaborative care models for people living with dementia (PwD) have been developed and evaluated, demonstrating safety, efficacy, cost-effectiveness. However, these studies are based on heterogeneous study populations primary settings, limiting the generalizability of results. Therefore, this aims to implement evaluate collaborative across various healthcare settings patient populations. Objective: To describe design multicenter implementation trial. Methods: This single-arm,...
Determining unmet need patterns and associated factors in primary care can potentially specify assessment batteries tailor interventions dementia more efficiently.
Abstract Background The healthcare needs of People living with Dementia (PlwD) (such as Alzheimer’s disease) are often unmet. Information about the community‐dwelling PlwD and their association sociodemographic clinical characteristics is needed to fill knowledge gap regarding factors influencing unmet among conduct a comprehensive assessment develop tailored interventions. Method We analyzed baseline data multi‐centre cluster‐randomized controlled trial (InDePendent) using descriptive...
Low-value medications (Lvm) provide little or no benefit to patients, may be harmful, and waste healthcare resources costs. Although evidence from the literature indicates that Lvm is highly prevalent in dementia, about financial consequences of dementia limited. This study analyzed association between receiving costs a public payers' perspective.
Person-centered care (PCC) requires knowledge about patient preferences. An analytic hierarchy process (AHP) is one approach to
Abstract Background So far, health services research in dementia has yet led to insufficient transfer of evidence into healthcare practice or implementation patient and caregiver perspective the design studies. A strong transdisciplinary network people with dementia, relatives, researchers, service providers is needed improve speed up interaction between these stakeholders. Here, we aimed integrate caregivers on establishment a translational for (TaNDem, funded by Federal Ministry Education...
Background: Previous trials reported that collaborative Dementia Care Management (cDCM) could be effective for patients and caregivers cost-effective healthcare systems in the short term. However, long-term evidence is lacking. Therefore, study's objective was to determine efficacy cost-effectiveness of cDCM compared with usual care.Methods: A General Practitioner (GP)-based, cluster-randomized-controlled intervention trial (DelpHi-MV) conducted. Participating GP practices were randomly...
Abstract Background Persons living with dementia (PwD) are commonly affected by low‐value medications (Lvm), i.e., unlikely to benefit patients but cause harm. Lvm in PwD have been associated negative physical, psychological, and financial outcomes. However, longitudinal effects not yet evaluated. Therefore, we aimed analyze the impact of on patient‐centered outcomes among over 24 months. Method This analysis was based 352 community‐dwelling PwD. Data were assessed at baseline after 12...
Person-centered care (PCC) requires knowledge about patient preferences. Among people living with cognitive impairments (PlwCI), evidence on quantitative, choice-based preferences, which allow to quantify, weigh, and rank elements, is limited. Furthermore, data the congruence of preferences physicians' judgements for PCC are missing. Such information expected support implementation PCC; state-of-the-art medical aligned patients'
Currently, there is a lack of sustainable, translational structures in dementia care research that enable nationally guided participatory interaction between research, practice, and those affected by dementia. A close cooperation practice with simultaneous inclusion essential to translate scientific evidence into address routine needs healthcare research. Within the project TaNDem we aim gap establishing network elements. We interviewed providers identify their expectations for design...
The increasing prevalence of dementia with the constant availability general practitioners is a significant challenge for healthcare systems worldwide. Advanced nursing practice (ANP) was implemented in several countries as one possible solution to overcome this challenge. However, concept care not yet Germany. InDePendent study ("Advanced and interprofessional care") first Germany, aiming implement evaluate model ANP persons (PwDs) living at home their caregivers where tasks were...
Abstract Background Rapidly increasing healthcare expenditures are a global challenge. Parts of these costs caused by an overtreatment patients or low‐value care (LvC), which is defined as unlikely to provide benefit the patient likely harm. However, there currently lack evidence about prevalence LvC and its association with patient‐reported outcomes in people living dementia (PwD). Method The analysis was based on baseline data DelpHi‐trial, including 516 community‐dwelling PwD. were...