A5032823788- Children's Rights and Participation
- Childhood Cancer Survivors' Quality of Life
- Health Systems, Economic Evaluations, Quality of Life
- Child and Adolescent Health
- Early Childhood Education and Development
- Mental Health and Patient Involvement
- Cardiac Health and Mental Health
- Lipoproteins and Cardiovascular Health
- Health Policy Implementation Science
- Ethics and Legal Issues in Pediatric Healthcare
- Youth Education and Societal Dynamics
- Sex and Gender in Healthcare
- Pharmaceutical Economics and Policy
- Patient-Provider Communication in Healthcare
- Clinical practice guidelines implementation
- Adolescent and Pediatric Healthcare
- Participatory Visual Research Methods
- Interprofessional Education and Collaboration
- Blood Pressure and Hypertension Studies
Hartstichting
2019-2024
University of Amsterdam
2014-2017
Amsterdam UMC Location Vrije Universiteit Amsterdam
2016
Vrije Universiteit Amsterdam
2014
<h3>Importance</h3> Familial hypercholesterolemia (FH) is an underdiagnosed and undertreated genetic disorder that leads to premature morbidity mortality due atherosclerotic cardiovascular disease. affects 1 in 200 250 people around the world of every race ethnicity. The lack general awareness FH among public medical community has resulted only 10% population being diagnosed adequately treated. World Health Organization recognized as a health priority 1998 during consultation meeting Geneva,...
Abstract Background Although it is widely recognized that children are willing, capable and legally entitled to be active participants in their health care, parents generally invited evaluate paediatric hospital care services rather than themselves. This problematic because cannot serve as the only spokespersons for perspectives experiences of children. Objective To investigate children's with on quality Netherlands, how they think could improved. Design A qualitative study incorporating...
Aims and objectives To investigate healthcare professionals' perspectives on child participation in paediatric hospital care their opinions improving practices. Background Some scholars argue that the decision‐making capacities of children largely depend attitudes professionals rather than children's own competences. Healthcare remain unexplored. Design Qualitative descriptive design. Methods ( n = 32) from 10 wards Netherlands participated semi‐structured interviews. Shier's Pathways to...
Increasingly, children are seen as social actors who knowledgeable about issues that concern their lives, both in research and policymaking. However, this approach is not without challenges, particularly relation to sensitive topics like poverty. One key challenge relates how involve effectively so stories actually listened acted upon by policymakers. This article reflects on the potential of photovoice a method make explicit children’s narratives lives inform policymakers perspectives. We...
Patient involvement is most common during the first phases of a research project. Despite good intentions, maintaining meaningful collaborations throughout process doesn't seem easy. Several training programmes for researchers and patients have been developed to stimulate continuous involvement. These are mostly one-time sessions at start project, separately. We aimed co-create prolonged side-by-side programme pairs patient representatives researchers, mutual learning from projects.
This study focuses on problems children living in contexts of poverty face daily life and how they perceive poverty. Findings are based research with (8–12 years) from impoverished areas the N etherlands. Besides as identified by children, such poor quality playgrounds lack money for activities, we a striking paradox, namely taboo or denial versus pervasiveness To understand handle this contradiction, reflect representation growing up through social identity framework.
Abstract Background & Objective Involving patients in scientific research has been shown to improve the relevance of research, as well its quality and applicability. Harteraad, Dutch patient organization for people with cardiovascular diseases, a Committee Experienced Experts (patients) advising researchers on content grant proposals prior submission. Until now, impact committee’s advice was unknown. This study, initiated by aimed evaluate provided investigate how strengthen this impact....
Abstract Background Recently, cardiovascular disease (CVD) research has focused on sex- and gender-related risk factors, in addition to conventional factors. This raises the question which factors are perceived by target group (patients with CVD) as priorities for further research. Methods We carried out a survey study priority setting more into according 980 men women CVD or those at increased of Netherlands. Data were descriptively analysed, stratified gender group. Results The most...
Children are not just small adults; they need to be diagnosed and treated in the context of their rapid growth development. However, guideline development, children's needs interests still overlooked. This study aims (1) develop a tool that could stimulate developers take children into account on more structural basis (2) explore how facilitate participation process development.The method used was three-phase multimethod sequential design. Professionals involved development participated...