A5067467869- Childhood Cancer Survivors' Quality of Life
- Cancer survivorship and care
- Management of metastatic bone disease
- Advanced Radiotherapy Techniques
- Sexual Differentiation and Disorders
- LGBTQ Health, Identity, and Policy
- Gastrointestinal Tumor Research and Treatment
- Colorectal and Anal Carcinomas
- Colorectal Cancer Surgical Treatments
- BRCA gene mutations in cancer
- Reproductive Health and Technologies
- Advances in Oncology and Radiotherapy
- Metastasis and carcinoma case studies
- Gastric Cancer Management and Outcomes
- Fetal and Pediatric Neurological Disorders
- Qualitative Research Methods and Ethics
- Neurofibromatosis and Schwannoma Cases
- Neuroendocrine Tumor Research Advances
- Hematopoietic Stem Cell Transplantation
- Family Support in Illness
- Lymphatic System and Diseases
- Genetic and Kidney Cyst Diseases
- Adolescent Sexual and Reproductive Health
- Reflective Practices in Education
- Meningioma and schwannoma management
University of Oslo
2019-2025
Oslo University Hospital
2015-2025
Background Bardet-Biedl syndrome (BBS) is a rare disorder involving complex combination of eye and kidney diseases, obesity learning difficulties. To better understand the roles family caregivers, this study sought to explore parents' experiences supporting adult children with BBS.
Purpose: The use of Hospital at Home (HaH) is expanding globally, including in the context allogeneic haematopoietic stem cell transplantation (HSCT), as an innovative care model that delivers hospital‐equivalent to patients a home setting. HaH designed for HSCT relies on informal caregivers, such next kin or friends. Given limited research caregivers’ perceptions HaH, this study aimed explore how caregivers undergoing experienced HaH. Method: Using phenomenological interpretive approach,...
Purpose . Our study aims to explore how former cancer patients experience physical and psychosocial late effects 3–7 years after they underwent treatment for primary bone sarcoma in the hip/pelvic region. A qualitative, phenomenological, hermeneutic design was applied. Methods Sarcoma survivors (<mml:math xmlns:mml="http://www.w3.org/1998/Math/MathML" id="M1"><mml:mi>n</mml:mi><mml:mo>=</mml:mo><mml:mn>10</mml:mn></mml:math>) previously treated at Oslo University Hospital, Norwegian Radium...
Among several long-term effects, people treated for cancer may experience an altered appearance. Our study aims to identify how visible body changes following surgical treatment affect the life and identity of primary bone sarcoma survivors 3-10 years after diagnosis. A qualitative, phenomenological, hermeneutic design was applied.Sarcoma (n = 18) who were previously at Norwegian Radium Hospital, Oslo University participated in study. In-depth semi-structured interviews conducted analyzed...
In ethnographic and participatory studies, the study location is often claimed to have an obvious significance, whereas, in methodology literature on qualitative interviews, this aspect frequently treated as a pragmatic issue. Based background, there are claims that of interview should be understood fundamental, active research process well sensitizing concept. Considering ambition, aim article develop further insights into how different locations may contribute knowledge development...
In some surgical disciplines, navigation-assisted surgery has become standard of care, but in rectal cancer, indications for navigation and the utility different technologies remain undetermined.
Bone sarcoma survivors face a number of physical and psychosocial challenges in relation to the late effects they experience following treatment. The present study aimed identify explore different trajectories that bone might navigate during follow-up.In-depth semi-structured interviews were conducted, an inductive thematic analysis was performed.When interviewed three ten years after primary diagnosis, eighteen cancer found be rehabilitation phases followed fairly distinct trajectories,...
Tyrosine kinase inhibitors (TKIs) have revolutionized the treatment of locally advanced and metastatic gastrointestinal stromal tumours (GISTs). Patients are experiencing prolonged survival but often at expense their health-related quality life. It is not only physical side effects that impact GIST patients' daily lives also psychological social challenges they to deal with. This qualitative study aimed explore life patients with disease on ≥ 5 years TKI treatment.Semi-structured interviews...
This study aims to explore how patients with metastatic gastrointestinal stromal tumour (GIST) experience the adverse effects of treatment, as expressed by individuals themselves.A qualitative, phenomenological and hermeneutic design was applied. Twenty GIST participated in study. In-depth semi-structured interviews were conducted then analysed means an inductive thematic analysis.The majority participants reported experiencing a changed life after being diagnosed commencing systemic medical...
Differences of sex development (DSD) are congenital conditions that involve variations in individuals' chromosomes, genes, external and/or internal genitalia, hormones, secondary characteristics. This study sought to elucidate the experiences adolescents and young adults living with DSD by focusing on their intimacy sexual health.An interpretative phenomenological research design was adopted. Semi-structured qualitative interviews were conducted 11 Norwegian aged 16-26 years who had five...
This study explored how patients with metastatic gastrointestinal stromal tumour (GIST) experience the psychosocial challenges associated their disease and its treatment, as well that influenced practical, relational, vocational, existential life.This qualitative has an explorative design applied a phenomenological hermeneutical approach. We conducted in-depth, semistructured interviews 20 GIST in long-term clinical remission. The gathered data were interpreted using thematic analysis.Living...
Differences of sex development (DSD) are a group congenital conditions that involve variations in chromosomes, genes, external and/or internal genitalia, hormones, and secondary characteristics. The present study sought to highlight the everyday challenges faced by adults with DSD as well understand how issues such disclosure, information sharing, stigma affect their daily life.We applied an interpretative phenomenological design explore first-person perspectives. Semi-structured qualitative...
Sarcoma patients' experiences of their health-related quality life and late effects following particle therapy are sparse. Such knowledge is essential to optimize treatment compliance follow-up care related this rapidly developing, but still centralized modality.This qualitative study has an explorative design applies a phenomenological hermeneutical approach based on semi-structured interviews with 12 bone sarcoma patients who had undergone abroad. The data were interpreted using thematic...
Background: We report on a pilot intervention study exploring the efficacy of Lightning Process® training programme for reducing chronic fatigue and improving health-related quality life in cancer survivors. Methods: 13 adolescent young adult survivors previously treated sarcoma or Hodgkin lymphoma were enrolled. A mixed-methods approach was applied. This involved use five validated patient-reported outcome measure (PROM) questionnaires at baseline three- six-month follow-up points to obtain...
Thoracic and breast sarcomas constitute a rare subgroup within the sarcoma population. There is limited knowledge about their health-related quality of life (HRQoL) valid disease-specific HRQoL instrument lacking. This qualitative study aimed to investigate issues experienced by small group thoracic patients. Semi-structured interviews with 19 four patients were conducted thematically analysed. Physical mentioned both groups fatigue, sleep disturbances, pain, wound infections, symptoms...
Abstract Background To report on our experience using a simple optional form to facilitate communication late effects between the patients and oncologists during outpatient follow-up detail spectrum of challenges reported by sarcoma survivors. Methods The was presented for complete before their consultation covered topics related unmet needs that patient wished discuss with medical personnel. Logistic regression analysis examined how distribution varied age, gender, diagnosis type treatment...
Background: Differences of Sex Development (DSD) are congenital conditions where the chromosomal, gonadal and anatomical sex characteristics do not strictly belong to male or female categories, that both at same time. Surgical interventions for individuals with DSD remain controversial, among affected individuals, caregivers, health-care providers. A lack evidence in support of, deferring, avoiding surgery complicates decision-making process. This study explores Norwegian professionals'...
Backgrounds. To investigate whether a formal mentoring program involving mentors from the business community could improve quality of life (QoL) sarcoma survivors struggling with late effects treatment. Methods. Seven former patients participated in an eight-month program. The was assessed through qualitative study phenomenological approach that utilized hermeneutical design. In-depth, semistructured interviews were conducted mentees after intervention and six months later. interviewed over....
Background: Chronic fatigue is a common late adverse effect following oncological treatment. We report on pilot intervention study exploring the efficacy of Lightning Process® training programme for reducing chronic and improving quality life in 13 cancer survivors who have undergone treatment sarcoma or Hodgkin lymphoma.Methods: A mixed-methods approach was applied. This involved use four validated patient-reported outcome measure (PROM) questionnaires at baseline three- six-month follow-up...