- Dementia and Cognitive Impairment Research
- Geriatric Care and Nursing Homes
- Palliative Care and End-of-Life Issues
- Global Cancer Incidence and Screening
- Frailty in Older Adults
- Health disparities and outcomes
- Cardiovascular Health and Risk Factors
- Patient-Provider Communication in Healthcare
- Nutrition and Health in Aging
- Family and Patient Care in Intensive Care Units
- Intergenerational Family Dynamics and Caregiving
- Mental Health and Patient Involvement
- Health and Well-being Studies
- Global Health Care Issues
- Pharmaceutical Practices and Patient Outcomes
- Identity, Memory, and Therapy
- Sleep and related disorders
- Colorectal Cancer Screening and Detection
- Migration, Aging, and Tourism Studies
- Psychological Well-being and Life Satisfaction
- BRCA gene mutations in cancer
- Health Policy Implementation Science
- Health, Environment, Cognitive Aging
- Medication Adherence and Compliance
- Community Health and Development
Johns Hopkins University
2018-2025
Johns Hopkins Medicine
2018-2025
Sidney Kimmel Comprehensive Cancer Center
2020
Johns Hopkins University Applied Physics Laboratory
2020
University of Baltimore
2020
Catholic University of America
2011-2017
University of America
2011-2014
Nueva Vida
2013
University of Maryland, Baltimore
2005
Successful deprescribing for people with dementia (PWD) depends on communication about medication-related priorities between PWD, care partners and clinicians. The objective of this study was to gain in-depth knowledge how elicitation PWD partner during a intervention shaped discussions pharmacists medications. Qualitative analysis audio-recorded interactions patient-care dyads in pilot pharmacist-led primary care. Patients ≥ 65 years taking 7 medications were recruited from an integrated...
BACKGROUND/OBJECTIVES Few studies have rigorously examined the magnitude of changes in well‐being after a transition into sustained and substantial caregiving, especially population‐based studies, compared with matched noncaregiving controls. DESIGN We identified individuals from national epidemiological investigation who transitioned caregiving over 10‐ to 13‐year follow‐up provided continuous in‐home care for at least 18 months 5 hours per week. Individuals did not become caregivers were...
Abstract Background Disparities in diagnosis persist among persons living with dementia (PLWD); most research on delayed relies medical records or administrative claims. This study aimed to identify factors that delay facilitate diagnoses racial ethnic minoritized PLWD and elicit care partner perspectives timing effects of diagnosis. Methods Maryland‐based participants cared for a age 60 older, self‐identified as Black/African/African‐American, Asian, Hispanic/Latino, spoke English. Nineteen...
Abstract Introduction Racial and ethnic disparities exist in the prevalence of obstructive sleep apnea (OSA); however, research on racial differences diagnosis treatment OSA older populations is limited. We examined whether likelihood being undiagnosed or untreated for differed by race/ethnicity among middle-aged adults with probable self-reported diagnosis. Methods Data came from 2016 wave Health Retirement Study (HRS), a nationally representative study United States. categorized...
People living with dementia (PLWD) have complex medication regimens, exposing them to increased risk of harm. Pragmatic deprescribing strategies that align patient-care partner goals are needed.
In Maryland, outreach initiatives have been unsuccessful in engaging low-income African American women mammography screening. This study aimed to identify factors influencing screening rates for women. Based on the Health Belief Model, a modified time series design was used implement culturally targeted intervention promote no-cost mammography-screening program. Data were collected from 40 years of age and older their history use knowledge beliefs about breast cancer. A 50% rate achieved...
Abstract Background informal caregiving for family and friends is becoming increasingly common due to the rising prevalence of chronic conditions a shortage affordable care options. While impact on caregivers’ health well-documented, nuances in experiences may not be captured quantitative studies. We aimed better understand perception their through qualitative analysis. Methods participants were from Caregiving Transitions Study (CTS), which ancillary REasons Geographic Racial Differences...
Abstract Background Frailty syndrome disproportionately affects older people, including 15% of non-nursing home population, and is known to be a strong predictor poor health outcomes. There growing interest in incorporating frailty assessment into research clinical practice, which may provide an opportunity improve doctor patient communication. Methods We conducted focus groups discussions solicit input from adult care recipients (non-frail, pre-frail, frail), their informal caregivers,...
Life's Simple 7 (LS7) is a metric for cardiovascular health based on the domains of smoking, diet, physical activity, body mass index, blood pressure, total cholesterol, and fasting glucose. Because they may be targeted secondary prevention purposes, we hypothesized that stroke survivors would experience improvement in LS7 score over time compared with people who did not stroke. We addressed this hypothesis REGARDS study (Reasons Geographic Racial Differences Stroke) cohort Black White...
The Substance Abuse and Mental Health Services Administration (SAMHSA) has funded grants to universities provide training conduct research on the dissemination of Screening, Brief Intervention, Referral Treatment (SBIRT) health care professionals. However, when it comes integrating SBIRT content into an existing curriculum, difficulties can arise. When there is so much already in adding more be challenging. Additionally, some faculty believe that course curricula should driven by expertise...
Abstract Background Older adults are encouraged to use Medical Visit Companions (MVCs) for routine medical encounters; however, many vulnerable older attend alone or fail attend. In the absence of available family friends, community volunteers could potentially fill this gap. We aimed understand role and acceptability volunteer MVCs accompanying visits explore potential barriers facilitators increasing MVC availability expanding roles beyond transportation. Methods Two moderators conducted 4...
Background: Telenovelas show significant promise as a mode of education that could potentially enhance hospice family caregivers' (HFCG) ability to manage distress or pain for themselves and the care recipient. Objectives: We sought understand HFCGs' perceived benefits challenges NOVELA using Levels Kirkpatrick conceptual framework. Setting/Subjects: HFCGs from two hospices in Mid-Atlantic region United States. Measurements: Semistructured interviews were conducted perceptions on...
The stress of family caregiving may affect many health-related variables, including sleep. We evaluated differences in self-reported sleep quality between incident caregivers and matched non-caregiving controls from a national population-based study. Caregivers were identified the Reasons for Geographic Racial Differences Stroke (REGARDS) study on seven different demographic health history factors. reported significantly longer onset latency than controls, before after adjusting covariates...
Background Recruitment and attrition are inherently challenging issues in hospice research. We sought to describe strategies of recruitment, retention, delivery NOVELA (short for tele novela), an intervention family caregivers (HFCG). Methods Statistics were kept every referral, consenting participant, visit session, activity. used the Social Marketing Mix Framework recruiting employed lessons learned. Results Two hospices U.S. Mid-Atlantic region referred 47 HFCG N = 20 agreed participate,...
We aimed to study whether physical frailty and cognitive impairment (CI) increase the risk of recurrent hospitalizations in older adults, independent comorbidity, disability.Two thousand five hundred forty-nine community-dwelling participants from National Health Aging Trends Study (NHATS) with 3 + years continuous Medicare coverage linked claims data were included. used marginal means/rates events model investigate association baseline CI (mild or dementia) frailty, separately...
Nationally, focus is increasing on the developmental experiences of young children (birth to age 8). Twenty four (arch)dioceses in large metropolitan areas participated a survey identifying extent and nature services provided by Catholic schools Charities programs their families. Six hundred seventy 100 completed surveys. Key findings suggest that are engaged plethora early childhood educational activities with Both entities provide direct education children, supporting families through...
Abstract Frailty is an important concept in the care of older adults, and there great interest incorporating user-friendly frailty assessments into research clinical settings. In-home, sensor-based technologies may provide a more dynamic, sensitive, accurate assessment measures. To investigate user perspectives for use mobile applications, we held five focus groups with community-dwelling adults (n= 10), their informal caregivers (n=9), medical professionals (n=8). We used qualitative...
Hospice family caregivers (HFCGs) support the needs of their loved ones but are at risk developing distress and anxiety. NOVELA is a four-chapter telenovela-style educational video to topics related hospice caregiving. Telehealth visits scheduled in 4 weekly sessions consisting chapter subsequent discussion with an interventionist. This feasibility pilot study tested NOVELA's effect change HFCGs' outcomes, session outcome measure completion (defined priori as >70%).
Abstract Introduction Sleep apnea and insomnia often co-occur in older adults, complicating treatment worsening outcomes. More research is needed to characterize sleep patients with without co-morbid insomnia. We characterized differences demographic clinical characteristics between individuals (COMISA) those alone a national sample of U.S. middle-aged adults. Methods Data came from the 2018 interview Health Retirement Study, nationally representative cohort approximately 20,000 Participants...
Abstract Introduction Sleep apnea is associated with several health conditions known to increase the use of services that may otherwise be preventable (e.g., hospitalization). We investigated association sleep and subsequent services, independent other potential confounders. Methods studied participants aged 50+ years in 2016 2018 Health Retirement Study (HRS), a nationally representative cohort approximately 20,000 middle-aged older adults United States. In 2016, were asked if “a doctor had...
<sec> <title>BACKGROUND</title> Family and unpaid caregivers play a crucial role in supporting people living with dementia (PLWD), yet they are not systematically identified documented by health systems. </sec> <title>OBJECTIVE</title> To determine the extent to which currently electronic record (EHR), elicit perspectives of clinical staff on how best identify, engage, support PLWD through EHR. <title>METHODS</title> were based ICD-10 codes or medications Chart review characterized caregiver...