A5052281123- Palliative Care and End-of-Life Issues
- Geriatric Care and Nursing Homes
- Frailty in Older Adults
- Grief, Bereavement, and Mental Health
- Health Systems, Economic Evaluations, Quality of Life
- Interprofessional Education and Collaboration
- Dementia and Cognitive Impairment Research
- Family and Patient Care in Intensive Care Units
- Patient Dignity and Privacy
- Oral health in cancer treatment
- Nursing Roles and Practices
- Intergenerational Family Dynamics and Caregiving
- Health Policy Implementation Science
- Interpreting and Communication in Healthcare
- Mental Health and Patient Involvement
- Pharmaceutical Practices and Patient Outcomes
- Healthcare Systems and Public Health
- Oral and gingival health research
- Oral Health Pathology and Treatment
- Clinical practice guidelines implementation
- Nausea and vomiting management
- Health, Medicine and Society
- Pain Management and Opioid Use
- Delphi Technique in Research
- Health Sciences Research and Education
Hospice UK
2018-2021
St Christopher's Hospice
2010-2020
Lancaster University
2018-2020
Homes England
2018-2019
University of Edinburgh
2018
University of Hertfordshire
2018
Whipps Cross University Hospital
2004-2005
Background: The provision of quality end-of-life care is increasingly on the national agenda in many countries. In United Kingdom, Gold Standards Framework for Care Homes programme has been promoted as a framework improving care. While its implementation recommended, there are no guidelines facilitators to follow undertake this role. Aim: It was hypothesised that action learning alongside high facilitation when implementing will result reduced proportion hospital deaths residents and...
Background: In the UK, implementation of Gold Standards Framework in Care Homes (GSFCH) programme is being promoted to develop quality end-of-life care for frail older people living and dying homes. Advance planning (ACP) discussions are an integral part this. This study explored experiences initiating completing these homes undertaking GSFCH. Methods: A qualitative descriptive was carried out three nursing implementing GSFCH programme. Following ACP discussion, 28 semi-structured interviews...
People with advanced dementia who live and die in nursing homes experience variable quality of life, care dying. There is a need to identify appropriate, cost-effective interventions that facilitate high-quality end-of-life provision.To establish the feasibility acceptability staff family conducting cluster randomised controlled trial Namaste Care intervention for people homes.The study had three phases: (1) realist review (2) refinement inform design (3) process evaluation economic...
The global population is changing with an increasing percentage of the oldest old, many whom in UK are looked after care homes. Care homes now provide for a fifth who die each year. However, most nursing privately owned and not part NHS, which exposes staff to lack skills/knowledge relation end-of-life care.To implement Gold Standards Framework Homes Programme audit outcomes within across five Clinical Commissioning Groups over 7-year period using research-based model facilitation.The...
In the UK 15.8% of people aged 85 years and over live in a care home or long-stay hospital setting. With projection an ageing population it is realistic to expect that number both living dying all homes will increase. This article describes implementation end-of-life programme empower staff meet their resident's needs.To implement programme, namely 'Steps Success' residential homes. Measurable outcomes were collected through audit.Over four audit deceased residents' records participating was...
Introduction Many people living with advanced dementia live and die in nursing care homes. The quality of life, dying experienced by these is variable. Namaste Care a multisensory programme developed for dementia. While there emerging evidence that may be beneficial dementia, need to conduct feasibility study establish the optimum way delivering this complex intervention whether benefits can demonstrated end-of-life care, individuals service delivery. aim ascertain conducting full trial...
Some interventions are developed from practice, and implemented before evidence of effect is determined, or the intervention fully specified. An example Namaste Care, a multi-component for people with advanced dementia, delivered in care home, community, hospital hospice settings. This paper describes development an description, guide training package to support implementation Care within context feasibility trial. allows fidelity be determined trial, users understand how similar their that...
Although oral problems are common in palliative care, care can be a neglected area of practice. This article discusses the introduction an protocol and standard one unit. The project used audit tools developed by Lee et al (2001) involved survey knowledge nursing medical staff, retrospective current practice using 50 sets patient’s notes. A documentation were with aim ensuring was both consistent line best Training provided to all staff within Three months later audited. results suggested...
Background The proportion of people dying in long-term care institutions is predicted to increase future years. Establishing the costs associated with provision such important as it represents a potentially increasing burden. Aim This study describes end life healthcare for nursing home residents. also explores effects resident characteristics on costs, through regression modelling. Setting took place south-east England. Participants Thirty-eight homes part study, comprising 2444 individual...
Care homes play a key role in delivering end-of-life care. In this article, Judith Coleman et al discuss the introduction and audit of Integrated Personalised Plan, developed to provide high-quality care during person's last days life
Over a fifth of the population developed countries die in care homes. While studies are emerging on outcomes last few weeks life, report experience as perceived by family members.As part wider study to improve delivery end-of-life care, bereaved relatives residents who had died home/hospital were sent Family Perception Care Scale questionnaire evaluate their provision for relative month life. The was posted relatives, from 37 nursing homes south-east England, 3-6 months following resident's...
For health and social care services to meet the needs of a growing ageing population they need respond appropriately. This response is only going be possible if attention paid individuals within it. includes those people living with learning disability (LD).To develop implement palliative programme that would LD, their families home staff.A resource folder was created following literature review meetings LD specialist experts, organisations managers. further developed collaboratively...
This article represents a journey made by three specialist Macmillan nurses through both the extended nurse prescribing and supplementary course. It highlights some of positive aspects problems encountered in training since qualification. The overall conclusion this team is that way forward with for Department Health to consider enabling prescribers prescribe from full Drug Tariff but within their competency, rather than focus on extending prescribing.
Background: There is international and national interest in the availability provision of quality end-of-life care. In UK this includes promotion advance care planning (ACP). Aims: To support home staff to apply policy on ACP practice. Methods: A proactive document, PErsonalised Advisory CarE (PEACE) plan, was created. An audit undertaken its implementation practice one home. Findings: All residents with a PEACE plan who died (n=8) did so their preferred place care; only 50% (3 out 6)...
Background: People with learning disability (LD) have complex comorbidities that develop at an earlier age than the general population and which they are now living longer. Identification, assessment management of these conditions is important but challenging. Aim: To resources care staff to enable them recognise manage changes decline in health a person LD. Methods: Two (PIP-LD CIRC) were developed through undertaking literature review; networking experts; collaborating homes for people...
Aims: This article aims to share the experience of a hospice in facilitating multi-centre audit end-of-life care homes, particularly noting challenges and enablers carrying out audit. Methods: The was retrospective survey bereaved relatives/next kin residents who died home, using an anonymous, validated questionnaire: Family Perception Care Scale. Questionnaires were sent 3-months after bereavement. Returned questionnaires analysed SPSS Excel. homes areas encompassing outer inner city...
Julie Kinley and Jo Hockley outline the necessary management for symptom control older people dying in care homes provide an essential tool to help this process
To provide appropriate cost-effective care for an ageing population, realignment of provision to conditions common in advanced age, notably, dementia and multi-morbidities is required. The use outcome measures practice may enable this.A collaborative baseline audit was undertaken understand how best implement into services people with across clinical settings.An academic institution set up a 6-month 11 English sites. Measures comprised: symptoms/concerns (Integrated Palliative Outcome Scale...
People with learning disabilities frequently have complex comorbidities, and the identification, assessment management of these conditions in a care home setting is important but often challenging. Researchers from St Christopher's Hospice offer insight into their specially developed programme for managing residents' health needs any sudden declines