A5087328918- Traumatic Brain Injury Research
- Connective tissue disorders research
- Hip disorders and treatments
- Traumatic Brain Injury and Neurovascular Disturbances
- Bone fractures and treatments
- Cardiac Arrest and Resuscitation
- Health, Environment, Cognitive Aging
- Psychosomatic Disorders and Their Treatments
- Pharmaceutical studies and practices
- Stroke Rehabilitation and Recovery
- Hemophilia Treatment and Research
- Resilience and Mental Health
- Medical and Biological Sciences
- Mental Health and Patient Involvement
- Neurogenetic and Muscular Disorders Research
- Bone health and osteoporosis research
- Musculoskeletal Disorders and Rehabilitation
- Health and Medical Research Impacts
- Bone health and treatments
- Child and Adolescent Health
Foundation To Eradicate Duchenne
2024
Durfee Foundation
2024
Sports Concussion Institute
2022-2023
Inova Fairfax Hospital
2023
Inova Health System
2023
Children's National
2018-2019
Patient reported outcome (PRO) information is crucial for establishing better patient-provider communication, improving shared decision-making between clinicians and patients, assessing patient responses to therapeutic interventions, increasing satisfaction with care. We used the Brittle Bones Disease Consortium (BBDC) Contact Registry People OI, managed by Rare Clinical Research Network (RDCRN) (1) evaluate construct validity of Patient-Reported Outcome Measurement Information System®...
There is limited research which examines health concerns of individuals with osteogenesis imperfecta (OI). Discussion groups leaders the adult OI community identified a broad range medical priorities beyond fractures and brittle bones. Our work underscores need to include patient-reported outcomes in rare bone disease research. Osteogenesis (OI) genetic disorder affecting collagen protein leading bones number other complications. To date, there life-long process aging this disease, much less...
Background Mild traumatic brain injury (mTBI) affects ~18,000 military personnel each year, and although most will recover in 3–4 weeks, many experience persisting symptoms impairment lasting months or longer. Current standard of care for U.S. with complex mTBI involves initial (<48 h) prescribed rest, followed by behavioral (e.g., physical activity, sleep regulation, stress reduction, hydration, nutrition), symptom-guided management. There is growing agreement that different clinical...
The primary purpose of this study was to examine the prevalence and percent agreement clinician-identified mild traumatic brain injury (mTBI) clinical profiles cutoff scores for selected Federal Interagency Traumatic Brain Injury Research common data elements (CDEs). A secondary investigate predictive value established CDE assessments in determining adults with mTBI.Seventy-one (23 males; 48 females) participants (M = 29.00, SD 7.60, range 18-48 years) within 1-5 months 24.20, 25.30, 8-154...
Objective: Evaluate compliance, symptom reactivity, and acceptability/experience ratings for an ecological momentary assessment (EMA) protocol involving ultra-brief ambulatory cognitive assessments in adolescent young adult patients with concussion. Setting: Outpatient concussion clinic. Participants: 116 aged 13 to 25 years Design: Prospective research design was used examine the Mobile Neurocognitive Health Project (MNCH); EMA study of environmental exposures, symptoms, objective...
Concussion is a mild traumatic brain injury that characterized by wide range of physical, emotional, and cognitive symptoms as well neurocognitive, vestibular, ocular impairments can negatively affect daily functioning quality life. Clinical consensus statements recommend targeted, clinical profile-based approach for management treatment. This requires clinicians utilize information obtained via interview multi-domain assessment battery to identify profile(s) (e.g., mood/anxiety, ocular,...
Abstract Purpose To examine the effects of self-reported behavioral regulation on post-concussion anxiety and depression in individuals with sport-related concussion (SRC) Methods A retrospective chart review patients (ages 15–25yrs) seeking care for a SRC within 1-7 days following injury were included this study. Participants completed self-report, 4-point Likert scale (0-Never, 3-Most Time) questionnaire that assessed previous week’s frequency Sleep, Physical Activity (PA), Diet,...
Abstract The purpose of this case study was to present clinical approaches for psychogenic speech impairments following concussion. Methods Retrospective chart review a 17-year-old Black male (Patient 1) who sustained sport-related concussion and 46-year-old Hispanic female 2) motor vehicle accident exhibited dysfluencies after injury. Both completed interview, symptom, neurocognitive, vestibular-ocular motor, mood assessments at each visit. Clinical impressions management decisions were...
Abstract Purpose Post-concussion depression is a commonly endorsed symptom, and key component of both the Emotional Cluster Post-Concussion Symptom Scale also Anxiety/Mood Clinical Profile. The purpose this study was to explore overlap between PCSS items on widely used measure depression, PHQ9, in concussed athletes. Methods A sample 365 athletes (mean age=15.10±2.25 years; 46% female) seeking care for concussion at specialty clinic within 30 days injury (M= 7.79±7.1 days) were enrolled...
The Mobile Neurocognitive Health project (MNCH) is an ambulatory assessment study that measures how concussion symptoms and impairments evolve change throughout the daily lives of patients. Patients with respond on their smartphones to four notifications over a 7-day period complete cognitive assessments, as well report information environmental exposures. Study compliance potential exacerbation from participation unknown. PURPOSE: 1) To document for MNCH protocol in participants concussion,...
ABSTRACT Background Patient reported outcome (PRO) information is crucial for establishing better patient-provider communication, improving shared decision making between clinicians and patients, assessing patient responses to therapeutic interventions increasing satisfaction with care. We used the Brittle Bones Disease Consortium (BBDC) Contact Registry People OI, managed by Rare Clinical Research Network (RDCRN) (1) evaluate construct validity of Patient-Reported Outcome Measurement...
Searchable abstracts of presentations at key conferences on calcified tissues ISSN 2052-1219 (online)