A5102994481- Family and Disability Support Research
- Down syndrome and intellectual disability research
- Chronic Disease Management Strategies
- Family Support in Illness
- Autism Spectrum Disorder Research
- Intergenerational Family Dynamics and Caregiving
- Emergency and Acute Care Studies
- Adolescent and Pediatric Healthcare
- Healthcare Policy and Management
- Genetics and Neurodevelopmental Disorders
- Medical Coding and Health Information
- Aging, Health, and Disability
- HIV/AIDS Research and Interventions
- Infant Development and Preterm Care
- Pacific and Southeast Asian Studies
- Ethics and Legal Issues in Pediatric Healthcare
- Family and Patient Care in Intensive Care Units
- Acute Lymphoblastic Leukemia research
- HIV-related health complications and treatments
- Gender, Labor, and Family Dynamics
- Homicide, Infanticide, and Child Abuse
- Geriatric Care and Nursing Homes
- Cancer Diagnosis and Treatment
- Sex and Gender in Healthcare
- Gender Politics and Representation
University of Glasgow
2017-2025
Gartnavel General Hospital
2017-2020
Janssen Scientific Affairs (United States)
2019-2020
Janssen (United States)
2019-2020
Royal Victoria Hospital
2020
University of Ulster
2020
Background Studies on avoidable mortality in adults with intellectual disabilities are limited, as studies causes of death. Objectives We aimed to quantify rates, and causes, identify factors (i.e., age, sex, Scottish Index Multiple Deprivation (SIMD)) related disabilities. Design A record linkage national cohort study. Setting or without co-occurring autism, aged 25+ years a randomly selected comparison group autism identified from Scotland’s Census, 2011. Census records were linked the...
To investigate prevalence of mental health conditions, sensory impairments and physical disability in children, adults older with co-occurring intellectual disabilities autism, given its frequent co-occurrence, compared the general population.Whole country cohort study.General community.5709 people 5 289 694 other people.Rates ORs 95% CIs for visual impairment, hearing impairment autism people, adjusted age, sex interaction between age autism.All four long-term conditions were markedly more...
Abstract Background Little is known about the population prevalence of co‐occurring intellectual disabilities and autism, its impact on general health status. The study aimed to investigate this, in comparison with population. Method Whole country data from Scotland's Census, 2011, were analysed. Descriptive statistics generated; chi‐squared tests undertaken; logistic regressions undertaken both whole data, adjusted for age gender, within autism. Results A total 5709/5 295 403 (1.08/1000)...
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Background Caring for a child with intellectual disabilities can be very rewarding but demanding experience. Research in this area has primarily focused on mothers, relatively little attention given to the mental health of fathers. Aims The purpose review was summarise evidence related fathers compared and general population. Method A meta-analysis undertaken all studies published by 1 July 2018 Medline, PsycINFO, CINAHL EMBASE, using terms disabilities, father carers. Papers were selected...
To determine the relative extent that autism and intellectual disabilities are independently associated with poor mental general health, in children adults.Cross-sectional study. For Scotland's population, logistic regressions investigated odds of predicting health conditions, adjusted for age gender.1 548 819 children/youth aged 0-24 years, 3 746 584 adults more than 25 whom 9396/1 had (0.6%), 063/1 (1.6%); 16 953/3 (0.5%), 6649/3 (0.2%). These figures based on self-report.Self-reported...
Intellectual disabilities and autism are lifelong often co-occur. Little is known on their extent of independent association with sensory impairments physical disability.For Scotland's population, logistic regressions investigated age-gender-adjusted odds ratios (OR) associations, independently, intellectual disability.1,548,819 children/youth, 3,746,584 adults. In the effect size autism, respectively, was as follows: blindness (OR = 30.12; OR 2.63), deafness 13.98; 2.31), disability 43.72;...
Purpose To investigate health, mortality and healthcare inequalities experienced by people with intellectual disabilities, autistic people, their determinants; an important step towards identifying implementing solutions to reduce inequalities. This paper describes the cohorts, record-linkages variables that will be used. Participants Scotland’s Census, 2011 was used identify citizens citizens, representative general population samples neither. Using community health index, Census data...
Objective: To provide contemporary data on cancer mortality rates within the context of incidence in population with intellectual disabilities. Methods: Scotland's 2011 Census was used to identify adults disabilities and controls records linked Scottish Cancer Registry death certificate (March 2011-December 2019). The control cohort without and/or autism were for indirect standardisation calculation Crude Incident Rates/Crude Mortality Rates (CIR/CMR), age-sex Standardized Rate Ratios/...
Objectives To investigate mortality rates and associated factors, avoidable in children/young people with intellectual disabilities. Design Retrospective cohort; individual record-linked data between Scotland’s 2011 Census 9.5 years of National Records for Scotland death certification data. Setting General community. Participants Children young disabilities living aged 5–24 years, an age-matched comparison group. Main outcome measures Deaths up to 2020: age death, age-standardised ratios...
Abstract Background As life expectancy for people with an intellectual disability increases, there is a growing cohort of older father carers. This study aimed to gain more in‐depth understanding carers’ experiences parenting. Methods Semi‐structured interviews were conducted 7 fathers ( M = 63.9 years) and analysed using constructivist grounded theory. Results Three conceptual categories identified. “Wearing different hats: how fathers’ sense identity had altered over the years. “Family...
<h3>Objectives</h3> The aim of this study was to investigate mortality rates and associated factors, avoidable in children/young people with intellectual disabilities. <h3>Methods</h3> This retrospective, general community, cohort identified all records for learning disabilities aged 5–24 the 2011 Scottish Census, a 15% age matched comparison group population free from these conditions. individuals were data-linked between Scotland's Census 9.5 years National Records Scotland death...