A5020115929- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Family and Disability Support Research
- Ethics and Legal Issues in Pediatric Healthcare
- BRCA gene mutations in cancer
- Child and Adolescent Health
- Maternal Mental Health During Pregnancy and Postpartum
- Adolescent and Pediatric Healthcare
Vlaams Patiëntenplatform
2025
Province of Antwerp
2023
Ghent University
2015-2021
Ghent University Hospital
2014-2019
Pediatric cancer is a life-threatening disease that challenges the life of diagnosed child, parents, and possible siblings. Moreover, it also places considerable demands on family life. The aim this study was to explore changes in functioning after pediatric diagnosis. Ten couples who had child with leukemia or non-Hodgkin lymphoma were interviewed individually about their experiences. Interviews semistructured, data analyzed using Multi Family Member Interview Analysis. Three themes emerged...
Childhood cancer is a life-threatening disease that poses significant challenges to the life of diagnosed child and his/her family members. Based on ABCX-model, aim current study was explore association between functioning, appraisal individual adjustment patients, parents siblings.
Childhood cancer not only presents challenges to the life of child with but also siblings' daily family life. The aim current study was gain a better understanding experiences living in where one has been diagnosed blood cancer.Ten siblings children leukemia or non-Hodgkin lymphoma completed semistructured interview about their everyday postdiagnosis. verbatim transcripts interviews served as data for an interpretative phenomenological analysis.The results showed that overall experienced...
Objectives: Pediatric cancer is a life-threatening disease that poses significant challenges to the life of all family members (diagnosed child, parents, siblings) and as whole. To date, limited research has investigated adjustment when facing pediatric cancer. The aim current longitudinal study was explore predictive role protective factors at individual (parental psychological flexibility), intrafamilial (dyadic coping) contextual level (network support) in explaining perceived by parents...
Objectives: Germline genetic testing is increasingly being integrated into pediatric oncology and a large number of families are interested. Current research on the psychological impact germline limited by main focus individual outcomes in parents or children little known about its at family level. Our study addresses that limitation exploring parents’ lived experiences how their family—as whole—is affected for cancer predisposition. Methods: In six who opted context predisposition, both ill...
Objective: Pediatric cancer is a life-threatening disease that poses significant challenges to the ill child and his/her parents. Among studies investigating risk protective factors for individual relationship adjustment of parents being confronted with pediatric cancer, couple – such as dyadic coping gained little research attention. Therefore, aim current study was explore association between individual/relationship outcomes in context cancer. Method: Participants were 59 couples children...
Background: Pediatric cancer is a severe life-threatening disease that poses significant challenges to the life of siblings. Based on social ecology model, current study aimed at exploring association between intrafamilial (family functioning, family support) and contextual (network resources, individual adjustment siblings facing in their brother/sister. Methods: Participants were 81 children with leukemia or non-Hodgkin lymphoma. The mean siblings’ age was 10.32 years. Siblings completed...
Self-report family functioning measures play a critical role in advancing our understanding of how families are impacted by, and adapt to, the demands childhood health conditions. In this article, we present key considerations when conceptualizing, assessing, analyzing dynamic processes research; discuss related implications for selecting instruments; provide an update on evidence base self-report measures. Researchers need to consider theory, definitions family, informants, instruments,...