A5078050533- Spinal Cord Injury Research
- Stroke Rehabilitation and Recovery
- Cerebral Palsy and Movement Disorders
- Traumatic Brain Injury Research
- Health Systems, Economic Evaluations, Quality of Life
- Meta-analysis and systematic reviews
- Musculoskeletal pain and rehabilitation
- Patient Satisfaction in Healthcare
- Delphi Technique in Research
- Cardiac Arrest and Resuscitation
- Clinical practice guidelines implementation
- Assistive Technology in Communication and Mobility
- Occupational Therapy Practice and Research
- Emergency and Acute Care Studies
- Trauma and Emergency Care Studies
- Autopsy Techniques and Outcomes
- Disability Education and Employment
- Traumatic Brain Injury and Neurovascular Disturbances
- Dementia and Cognitive Impairment Research
- Acute Ischemic Stroke Management
- Geriatric Care and Nursing Homes
- Family and Disability Support Research
- Prosthetics and Rehabilitation Robotics
- Injury Epidemiology and Prevention
- Pressure Ulcer Prevention and Management
Shirley Ryan AbilityLab
2016-2025
Northwestern University
2016-2025
John Wiley & Sons (United States)
2024
Hudson Institute
2024
Toronto Public Health
2017-2023
Universität Hamburg
2013-2023
University Medical Center Hamburg-Eppendorf
2013-2023
University of Insubria
2020-2023
Centre National de la Recherche Scientifique
2023
Centre Hospitalier Universitaire de Grenoble
2023
To address the need for brief, reliable, valid, and standardized quality of life (QOL) assessment applicable across neurologic conditions.Drawing from larger calibrated item banks, we developed short measures (8-9 items each) 13 different QOL domains physical, mental, social health evaluated their validity reliability. Three samples were utilized during form development: general population (Internet-based, n = 2,113); clinical panel 553); outpatient (clinic-based, 581). All forms are...
Purpose. Although participation is an important construct and valued goal, how it conceptualized, defined measured varies widely. This qualitative, multi-site study sought to gain insider perspective from people with disabilities in grounding what means, characterize it, the barriers supports participation.Method. Sixty-three self-identifying diverse participated qualitative focus groups across sites.Results. Participants conceptualized as a cluster of values that included active meaningful...
The functional independence measure (FIM) is used to determine the degree of disability that patients experience and progress they make through programs medical rehabilitation. Rasch analysis a statistical technique for constructing interval measures from ordinal data was applied derive FIM measures. major factors are taken into account produce relative difficulty in performance items ability persons tested. Our analyses showed difficulties experienced performing FIM. There were two dominant...
Background and Purpose —The aims of this study were to examine the frequency, types, clinical factors associated with medical complications that occur during inpatient rehabilitation identify risk for require a transfer an acute care facility. Methods —A cohort 1029 patients consecutively admitted stroke was studied. Demographic information, impairment, preexisting conditions, admission laboratory abnormalities recorded. Medical complications, defined as new or exacerbated problems,...
The need to measure and evaluate orthotics prosthetics (O&P) practice has received growing recognition in the past several years. Reliable valid self-report instruments are needed that can help facilities patient outcomes. objective of this project was develop a set assess functional status, quality life, satisfaction with devices services be used an clinic. Selecting items from variety existing instruments, authors developed revised four differentiate patients varying levels lower limb...
Prosthetic use and satisfaction in wounded servicemembers veterans with unilateral upper-limb loss has not been thoroughly explored. Through a national survey, we enrolled 47 participants from the Vietnam conflict 50 Operation Iraqi Freedom/Operation Enduring Freedom (OIF/OEF) combat-associated major loss. Upper-limb prosthetic devices were used by 70% of group 76% OIF/OEF group. Mechanical/body-powered favored group, while combination myoelectric/hybrid mechanical/body-powered completely...
• This study documented the status of 432 patients and characteristics functional improvements outcomes achieved by 163 who participated in comprehensive stroke rehabilitation. Scores on 100-point Activities Daily Living Index improved from hospital admission to discharge declined slightly at follow-up. An average point gain 0.6 per day was found that unrelated age, sex, side hemiparesis, or status. Seventy-nine percent were discharged home; 85% home Eleven working Patients traveled outside...
Stroke is a leading cause of long-term disability in the USA; however, we have an incomplete understanding how stroke affects quality life.We report here findings from focus groups with 9 survivors and 6 caregivers addressing patients' post-stroke life.Key themes identified by patients were: social support, coping mechanisms, communication, physical functioning independence. Role changes were important to caregivers. Much discussion described specific ways which altered relationships.These...
Context/ObjectiveThe Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system was developed to address the shortage relevant and psychometrically sound patient reported outcome (PRO) measures available for clinical care research in spinal cord injury (SCI) rehabilitation. Using a computer adaptive testing (CAT) approach, SCI-QOL builds on Patient Reported Outcomes Measurement Information System (PROMIS) Neurological Disorders (Neuro-QOL) initiative. This initial manuscript...
To use a patient-centered approach or participatory action research design combined with advanced psychometrics to develop comprehensive patient-reported outcomes (PRO) measurement system specifically for individuals traumatic brain injury (TBI). This TBI Quality-of-Life (TBI-QOL) expands the work of other large PRO initiatives, that is, Patient-Reported Outcomes Measurement Information System and Neurology initiative.Five Model Systems centers across United States.Adults TBI.Classical...
To determine whether the Traumatic Brain Injury Model Systems National Database (TBIMS-NDB) is representative of individuals aged 16 years and older admitted for acute, inpatient rehabilitation in United States with a primary diagnosis traumatic brain injury (TBI).