Background Long-term disability following stroke can lead to participation restrictions in complex and social everyday activities, yet information is lacking on what extent survivors return their pre-stroke levels of participation. Objectives The objectives this study were investigate the level activities 6 years after stroke, compare with identify predictors returning Method All patients admitted Karolinska University Hospital's units during a 1-year period eligible participate 349...

<h3>Objectives:</h3> To describe variations in fatigue over the course of 2 years a sample persons with multiple sclerosis (MS), and to investigate predictive value following variables on fatigue: sex, age, sense coherence, living partner, children, work status, immunomodulatory treatment, mood, disease severity, course, time since diagnosis time. <h3>Methods:</h3> Every 6 months, 219 outpatients at an MS specialist clinic were assessed using Fatigue Severity Scale (FSS). Predictive values...

Objective: To examine data collected using the Stroke Impact Scale 3.0 (SIS) at 3 and 12 months post-stroke, to explore any clinically meaningful changes in everyday life relation age, gender stroke severity.Design: Prospective longitudinal study.Methods: A total of 204 persons were assessed SIS after onset stroke.Changes domain scores calculated over time severity.Results: The Strength, Hand Function Participation domains had highest perceived impact months, indicating problems life.Stroke...

To investigate the perceived needs for health services by persons with stroke within first year after rehabilitation, and associations between impact of stroke, involvement in decisions regarding care/treatment, having met.Data was collected, through a mail survey, from patients who were admitted to university hospital 2012 had received rehabilitation discharge unit. The lasted an average 2 4.6 months. Stroke Survivor Needs Survey Questionnaire used assess participants' perceptions on care...

Several studies have found that fatigue is one of the most commonly reported symptoms after stroke and difficult to cope with. The present study aimed investigate presence severity self-reported six years onset associated factors. cohort "Life After Stroke Phase I" (n = 349 persons) was invited at report (Fatigue Severity Scale 7-item version), perceived impact global recovery (Stroke Impact Scale), anxiety depression (Hospital Anxiety Depression life satisfaction (Life Satisfaction...

Little is known about the long-term course of disability in relation with disease severity people multiple sclerosis (PwMS). To explore changes a broad spectrum over 10 years PwMS. We conducted longitudinal study 155 PwMS who attended MS Centre at Karolinska University Hospital, Stockholm. Disease was determined by use Expanded Disability Status Scale (EDSS) and classified as mild (EDSS score 0–3.5) or moderate/severe 4–9.5). Ten-year perceived physical psychological impacts MS, walking,...

There is a trend towards value-based health service, striving to cut costs while generating value for the patient. The overall objective comprises higher-quality services and improved patient safety cost efficiency. approach could align with patient-centred care, as it entails focus on patient's experience of her or his entire cycle including use well-defined outcome measurements. Challenges arise when applied people living long-term complex conditions that require support from various...

People who have suffered a stroke commonly report unfulfilled need for rehabilitation. Using model of patient satisfaction, we examined characteristics in individuals that at 3 months after predicted, or 12 were associated with unmet rehabilitation dissatisfaction health care services stroke. The participants (n = 175) received the units Karolinska University Hospital, Sweden. dependent variables "unfulfilled needs rehabilitation" and "dissatisfaction care" collected using questionnaire....

Objective: The aim was to study a client-centred activities of daily living (ADL) intervention (CADL) compared with the usual ADL (UADL) in people stroke regarding: independence ADL, perceived participation, life satisfaction, use home-help service, and satisfaction training and, their significant others, caregiver burden, informal care. Methods: In this multicentre study, 16 rehabilitation units were randomly assigned deliver CADL or UADL. occupational therapists who provided specifically...

The purpose was to investigate the occurrence of self-reported falls in people with stroke at 3, 6, and 12 months 6 years post predictors for during years.A prospective study involving 121 stroke. Data were obtained through structured interviews assessments. Generalized estimating equation modeling using proportional odds used explore predictive value fall history, functioning/disability, personal factors years.The proportion fallers constituted 35%, 26%, 33%, 35% sample follow-up,...

The aim of the study was to explore associations between dyad's (person with stroke and informal caregiver) perception person stroke's rehabilitation needs severity, personal factors (gender, age, sense coherence), use services, amount care caregiver burden. Further, experience everyday life changes among persons their caregivers strategies for handling these 1 year after stroke.A mixed methods design used combining quantitative qualitative data analyses.Data were mainly collected in...

<p class="Pa1"><strong>Introduction: </strong>Care transitions are a complex set of actions that risk poor quality outcomes for patients and their significant others. This study explored the transition process between hospital continued rehabilitation in home. The is from perspectives people with stroke, signifi­cant others healthcare professionals Stockholm, Sweden. class="Pa1"><strong>Method: </strong>Focus group interviews (n = 10), semi-structured individual 23) dyad 4) were conducted...

Abstract Background Despite intentions to increase user participation in the development of health services, concept and how it unfolds within studies with a participatory design has rarely been addressed. Objective The aim this study was describe manifests itself co‐design process involving patients, significant others health‐care professionals, including potential enablers or barriers. Methods This conducted context new person‐centred transition from hospital continued rehabilitation home...

Life after stroke may entail several lifestyle changes and new routines. Hence, it is imperative for people with to understand make use of health information, i.e. have sufficient literacy. This study aimed explore literacy its associations outcomes at 12-months post-discharge regarding depression symptoms, walking ability, perceived recovery, participation in stroke.This was a cross-sectional Swedish cohort. Data were collected 12 months using European Health Literacy Survey Questionnaire,...

The aim of this descriptive, cross-sectional study was to analyse health-related quality life (HRQoL) in a population-based sample people with multiple sclerosis (PwMS) Stockholm County, respect disease-related and sociodemographic factors coping capacity. A further compare our results on HRQoL--collected by face-to-face interviews at home-visits--with the from mail-surveyed PwMS Stockholm. Home visits were made 166 clinically definite MS. Data obtained structured using Sickness Impact...

Considering the costs of multiple sclerosis (MS), it is crucial that health-related services supplied are in accordance with needs as they perceived by people MS (PwMS). Satisfaction care related to quality and can provide health providers means for improvement. The aim was explore satisfaction amongst PwMS over a two-year period, also taking sex disease severity into consideration. sample consisted 219 outpatients at specialist clinic. Data on were collected every six months using...

Purpose: Factors that impact participation are of scientific and clinical importance. Participation in everyday activities among persons with multiple sclerosis (MS) can be compromised by various factors however the combined contribution these to has not been explored. The aim this study was describe relationship between cognitive impairment, physical disability signs depression daily life MS. Methods: Data from 200 participants were collected an observational, prospective study. majority...

To compare changes regarding perceived participation, independence in activities of daily living (ADL) and life satisfaction between 3, 6 12 months after inclusion a study client-centred ADL intervention usual stroke.A multicentre randomized controlled trial.Sixteen rehabilitation units were randomly assigned to provide or intervention. Eligible participants persons ≤ 3 stroke who had been treated unit, dependent two domains, not diagnosed with dementia, able understand instructions. Data...

Purpose: The purpose of this study was to identify how people 6–12 months after stroke were using and integrating information communication technology (ICT) in their everyday lives.Method: To capture the participants' experiences, one focus group 14 individual interviews carried out Sweden Denmark regarding use ICT life. participants comprised 11 men seven women aged 41–79 years. A grounded theory approach used throughout a constant comparative method analysis.Results: Five categories...

ObjectivesTo explore the perceived quality of care transitions from hospital to home with referral subsequent rehabilitation in home, and factors associated low quality, people stroke.DesignObservational study.Setting ParticipantsEligible were patients a suspected acute stroke admitted 1 4 inpatient units Stockholm region discharged neurorehabilitation team primary care.MethodsData on transition was collected Care Transition Measure (CTM-15) week after discharge. Additional data mainly...

Aim To evaluate the acceptability of two co-designed mobile applications Mit Sygehus [a knowledge-based solution] and Genoptræn.dk self-training to support a cross-sectoral, person-centred empowering stroke rehabilitation.

Stroke may affect physical functioning, cognition, and mental social aspects of one's life. Health literacy self-efficacy are associated with positive health outcomes important factors for managing the diverse consequences a stroke. However, there is very little literature on association between self-efficacy. This study aimed to investigate among stroke survivors 1 year after discharge from hospital. Participants in this cross-sectional were patients diagnosed stroke, mainly mild who...

The aim of this study was to analyse cognitive and motor function in a population-based sample people with multiple sclerosis (PwMS), taking into account both disease-related data sociodemographic factors. Data were collected from 166 PwMS during home visits. Cognitive assessed by the Mini-Mental State Examination (MMSE), Free Recall Recognition 12 Random Words Test (FRR12RWT), Symbol Digit Modalities (SDMT); manual dexterity Nine-Hole Peg (NHPT); global capacity Lindmark Motor Capacity...