A5084077669- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Congenital Heart Disease Studies
- Family and Disability Support Research
- Healthcare Policy and Management
- Mental Health and Patient Involvement
- Child Nutrition and Feeding Issues
- Family and Patient Care in Intensive Care Units
McGill University Health Centre
2021-2024
Introduction Youth with brain-based disabilities (BBDs), as well their parents/caregivers, often feel ill-prepared for the transfer from paediatric to adult healthcare services. To address this pressing issue, we developed MyREADY Transition TM BBD App, a patient-facing e-health intervention. The primary aim of randomised controlled trial (RCT) was determine whether App will result in greater transition readiness compared usual care youth BBD. Secondary aims included exploring contextual...
There is a growing number of youth with healthcare needs such as disabilities or chronic health conditions who require lifelong care. In Canada, transfer to the adult system typically occurs at age 18 and set by policy regardless whether their families are ready. When transition services suboptimal, may experience detrimental gaps in resulting increased visits emergency department poor outcomes. Despite critical need support system, there limited legislation ensure successful mandate...
Background Transition from pediatric to adult health care varies and is resource intensive. Patient-centered information technology (HIT) interventions are increasingly being developed in partnership with patients. Objective This study aims develop an internet-based mobile app intervention for patients brain-based disabilities improve transition readiness. Methods The was designed aged 15 17 years having the ability use a app. A multidisciplinary team, industry partner, patient family...
<sec> <title>BACKGROUND</title> Transition from pediatric to adult health care varies and is resource intensive. Patient-centered information technology (HIT) interventions are increasingly being developed in partnership with patients. </sec> <title>OBJECTIVE</title> This study aims develop an internet-based mobile app intervention for patients brain-based disabilities improve transition readiness. <title>METHODS</title> The was designed aged 15 17 years having the ability use a app. A...