Development and evaluation of iManage: A self‐management app co‐designed by adolescents with sickle cell disease

• DOI: 10.1002/pbc.26177
• Publication Date: 2016-08-30T08:26:41Z
• Authors: Lori E. Crosby; Russell E. Ware; Alana Goldstein; Ashley Walton; Naomi E. Joffe; Craig Vogel; Maria T. Britto
• Keywords: Adult; Male; Internet; Adolescent; 9. Industry and infrastructure; Anemia, Sickle Cell; Patient Acceptance of Health Care; Prognosis; Mobile Applications; 3. Good health; Self Care; User-Computer Interface; Young Adult; 03 medical and health sciences; 0302 clinical medicine; Surveys and Questionnaires; Humans; Female; Cell Phone; Follow-Up Studies

Abstract Background Adolescents and young adults (AYAs) with sickle cell disease (SCD) are a vulnerable population high risk of morbidity that could be decreased effective self‐management. Previous research suggests mobile applications (apps) may facilitate AYA engagement in health‐promoting behaviors. The objectives this study were: (i) describe Internet access use SCD; (ii) identify barriers for self‐management population; (iii) collaborate to co‐design app would minimize barriers; (iv) evaluate the feasibility acceptability app. Procedure In phase 1, 46 AYAs SCD 16–24 years age completed survey use. During 2, 19 (average 20 ± 2.5 years) eight healthcare providers participated interviews sessions develop 3, five usability testing. Results had daily (69%) using their computers (84%) or phones (70%). Participants went online health information (71%) preferred Web sites interactive/social features (83%). Barriers included failing believe suffer, lack tailored support, mechanism visualize progress, limited opportunities peer interaction around prototype (iManage) was rated as highly feasible beneficial. Conclusions A co‐designed by useful tool engaging them strategies designed improve health.