Parental experiences of childhood cancer treatment in Kenya
Complementary Therapies
Male
Parents
Health Knowledge, Attitudes, Practice
Adolescent
Health Personnel
610
Psychological experiences
03 medical and health sciences
0302 clinical medicine
Cost of Illness
Socioeconomic experiences
Neoplasms
Physician communication
Humans
Treatment-related experiences
Parent-Child Relations
Child
Health Services Needs and Demand
Physician-Patient Relations
Kenya
301
3. Good health
Self-Help Groups
Cross-Sectional Studies
Complementary alternative treatment
Child, Preschool
Patient Compliance
Female
Childhood cancer
Stress, Psychological
DOI:
10.1007/s00520-014-2475-x
Publication Date:
2014-10-16T02:04:30Z
AUTHORS (10)
ABSTRACT
Our study explores socioeconomic, treatment-related, and psychological experiences of parents during cancer treatment of their children at an academic hospital in Kenya.This cross-sectional study used semi-structured questionnaires. Parents whose children came for cancer treatment consecutively between November 2012 and April 2013 were interviewed.Between 2012 and 2013, 115 oncology patients attended the hospital and 75 families (response rate 65 %) were interviewed. Cancer treatment resulted in financial difficulties (89 %). More information about cancer and treatment was required (88 %). More contact with doctors was needed (83 %). At diagnosis, cancer was perceived as curable (63 %). However, parents were told by health-care providers that most children with cancer die (49 %). Parents had difficulties with understanding doctors' vocabulary (48 %). Common reasons to miss hospital appointments were travel costs (52 %) and hospital costs (28 %). Parents (95 %) used complementary alternative treatment (CAM) for their children. Health-care providers told parents not to use CAM (49 %). Parents had not discussed their CAM use with doctors (71 %). Community members isolated families because their child had cancer (25 %), believed that child was bewitched (57 %), advised to use CAM (61 %), and stopped conventional treatment (45 %). Some families (15 %) never disclosed the child's illness to community members. Parents shared experiences with other parents at the ward (97 %) and would otherwise not understand the disease and its treatment (87 %).Parents suffer financial hardships and are dissatisfied with doctors' communication regarding their children's condition. CAM is very commonly used. Doctors need to improve their communication skills and discuss CAM more openly. Cancer programs should include more support for parents: financial assistance, a facility where parents and children can stay during the course of therapy, and parent support groups.
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