Neuro-oncology family caregivers’ view on keeping track of care issues using eHealth systems: it’s a question of time

• DOI: 10.1007/s11060-017-2504-y
• Publication Date: 2017-05-26T02:32:38Z
• Authors: Florien W. Boele; Cornelia F. van U...; Karen Hilverda; Jason Weimer; Heidi S. Donovan; Jan Drappatz; Frank S. Lieberman; Irma Verdonck-de ...; Paula R. Sherwood
• Keywords: Family Caregivers; eHealth; Caregiver Burden

Primary brain tumors (PBTs) are rare but have a great impact on both patient and family caregiver wellbeing. Supporting caregivers can help them to continue their caregiving activities maintain the patients' best possible level of quality life. Efforts improve PBT wellbeing should take into account country- or culture-specific differences in care issues supportive needs serve larger groups. We aimed explore caregivers' satisfaction with current provision, as well thoughts monitoring paper-based digital instruments. Twelve were interviewed United States. The semi-structured interviews transcribed verbatim analyzed by two coders independently. Data combined those collected Netherlands, following similar methodology (N = 15). found that utilize formal informal support services, who experience more would prefer support, particularly early disease phase. Keeping track was thought provide insight unmet find professional help, it requires investment time takes discipline. Caregivers preferred brief easy-to-use 'blended care' instrument combines personal feedback. present study shows preferences neuro-oncology toward keeping likely not heavily influenced differences. development any thus has potential benefit large group caregivers.