Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study

• DOI: 10.1007/s11764-011-0173-y
• Publication Date: 2011-01-27T09:22:41Z
• Authors: Linda C. Harlan; Charles F. Lynch; Theresa H. M. Keegan; Ann S. Hamilton; Xiao-Cheng Wu; Ikuko Kato; Michele M. West; Rosemary D. Cress; Stephen M. Schwartz; Ashley W. Smith; Dennis Deapen; Sonja M. Stringer; Arnold L. Potosky
• Keywords: Adult; Male; Lymphoma; Adolescent; Pediatric Cancer; Oncology and Carcinogenesis; 610; Article; Young adult cancer; Young Adult; 03 medical and health sciences; Rare Diseases; 0302 clinical medicine; Clinical Research; Neoplasms; 616; Humans; Psychology; Oncology & Carcinogenesis; Survivors; Aetiology; Adolescent cancer; Survey; Cancer; Pediatric; Oncology(nursing); Medical records; Data Collection; Patient Selection; Response rates; Hematology; Continuity of Patient Care; 16. Peace & justice; AYA HOPE Study Collaborative Group; 3. Good health; Consent forms; Oncology; Public Health and Health Services; Quality of Life; Female; Patient Participation; Algorithms; 2.4 Surveillance and distribution; Follow-Up Studies; SEER Program

Cancer is rare in adolescents and young adults (AYA), but these patients have seen little improvement survival contrast to most other age groups. Furthermore, participation research by AYAs typically low. We conducted a study examine the feasibility of recruiting population-based sample AYA survivors issues treatment health outcomes.