Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study

eHealth Benchmarking
DOI: 10.1007/s11764-023-01498-8 Publication Date: 2023-11-28T14:02:25Z
ABSTRACT
Abstract Purpose To identify barriers and facilitators for implementing the Survivorship Passport (SurPass) v2.0 in six long-term follow-up (LTFU) care centres Europe. Methods Stakeholders including childhood cancer survivors (CCSs), healthcare providers (HCPs), managers, information technology (IT) specialists, others, participated online Open Space meetings. Topics related to Care, Ethical, Legal, Social, Economic, Information & IT-related aspects of SurPass were evaluated. Results The study identified 115 159 facilitators. main included lack standardised LTFU network cooperation, uncertainty about accessibility, how integrate into electronic health systems. coordinated centres, allowing CCSs conceal sensitive (semi)automatic data transfer filing. Conclusions Key implementation areas care, ethical considerations, IT. address these facilitate on SurPass, we have formulated 27 recommendations. recommendations include using internationally developed protocols guidelines implement making clear decisions which parties access accordance with CCSs, facilitating (semi)automated filing Health Level 7 (HL7) Fast Healthcare Interoperability Resources (FHIR). Implications Cancer Survivors findings this can help ensure that receive high-quality necessary manage their effectively.
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