Menstrual Blood Donation for Endometriosis Research: A Cross-Sectional Survey on Women’s Willingness and Potential Barriers

• DOI: 10.1007/s43032-024-01481-3
• Publication Date: 2024-02-28T19:02:54Z
• Authors: Kheira Bouzid; Mathilde Bourdon; Roxane Bartkowski; Marie Verbanck; Charles Chapron; Louis Marcellin; Frederic Batteux; Pietro Santulli; Ludivine Doridot
• Keywords: Menstruation; Cross-sectional study

Abstract An anonymous online survey in French was used to assess if endometriosis patients would be as ready unaffected women donate their menstrual blood for biological research on and evaluate potential barriers such donation. It distributed September 2022 by social media two mailing lists, including a patient organization. The questionnaire assessed participant age brief medical history (hormonal contraception, diagnosis, type of endometriosis), experience (menstrual abundance, dysmenorrhea), whether participants blood. Women who self-declared with an established diagnosis versus no were compared. Seven hundred seventy-eight answered the survey. Among menstruation ( n = 568), 78% are willing research. Importantly, this proportion higher declared having (83%, 299) compared (68%, 134, p < 0.001). previous use cup dysmenorrhea significantly associated willingness blood, while hormonal contraception unwillingness donate. Only had predictive value No significant relationship observed between donation age, heavy bleeding patients, subtypes. In conclusion, affected or not largely endometriosis, is barrier donation, more likely