Transition from pediatric to adult care in patients with chronic intestinal failure on home parenteral nutrition: How to do it right?

• DOI: 10.1016/j.clnu.2024.06.019
• Publication Date: 2024-06-20T16:00:25Z
• Authors: Aysenur Demirok; Marc A. Benninga; Antonella Diamanti; Myriam El Khatib; Anat Guz-Mark; Johannes Hilberath; Cécile Lambe; Lorenzo Norsa; Loris Pironi; Alida A. Sanchez; Mireille Serlie; Merit M. Tabbers
• Keywords: Intestinal Failure

Life expectancy of children with chronic intestinal failure (CIF) on home parenteral nutrition has greatly improved. Children are now able to grow into adulthood which requires transfer from pediatric adult health care. A guideline for structured transition is lacking and the demand a more standardized care this patient group necessary. Therefore, we investigated perceptions professionals various disciplines working in specific field, concerning effective interventions regarding