Implementing palliative care, based on family-centered care, in a highly complex neonatal unit

• DOI: 10.1016/j.jped.2023.09.009
• Publication Date: 2023-10-29T05:04:51Z
• Authors: Ana Morillo Palomo; Jordi Clotet Caba; Marta Camprubí Ca...; Elena Blanco Díez; Joel Silla Gil; Ana Riverola de V...
• Keywords: Neurocognitive; End-of-Life Care

To describe the causes and circumstances of neonatal mortality determine whether implementation a palliative care protocol has improved quality end-of-life care. A retrospective observational study including all patient mortalities between January 2009 December 2019. Cause death characteristics support during dying process were collected. Two periods, before after protocol, compared. There 344 deaths. Congenital malformations most frequent cause (45.6 %). Most patients died transition to (74.4 The frequently cited criteria for initiating was poor neurocognitive prognosis (47.2 Parents accompanied their children in 72 % cases. Twenty-three percent outside Neonatal Intensive Care Unit being transferred private room enhance family intimacy. After addition statistically significant differences observed experience process. severe congenital malformations. by parents helped improve family-centered