International consensus on sleep problems in pediatric palliative care: Paving the way

• DOI: 10.1016/j.sleep.2024.05.042
• Publication Date: 2024-05-24T00:16:56Z
• Authors: Anna Mercante; Judith Owens; Oliviero Bruni; Magda L. Nunes; Paul Gringras; Shirley Xin Li; Simonetta Papa; Ulrika Kreicbergs; Joanne Wolfe; Boris Zernikow; Ana Lacerda; Franca Benini; Albert Li; Amy R. Wolfson; Anna Marinetto; Anna Santini; Anna Zanin; Brett R. Kuhn; Charlotte Angelhoff; Cristiane Fumo do...; Daniel Y.T. Goh; Elisabetta Verrillo; Eric S. Zhou; Esther Angélica L...; Eva Bergstraesser; Fabio Pizza; Frans Nilsson; Giuseppe Plazzi; Guanghai Wang; Guillermo Andrey ...; Gustavo Antonio M...; Hal Siden; Holger Hauch; Huda Abu-Saad Huijer; Igor Catalano; Indra Narang; Irene Avagnina; Jaime Gutierrez D...; Joakim Wille; Jodi Mindell; Jori Bogetz; Julia Downing; Julie Hauer; Jürg Streuli; Justin Baker; Karen Spruyt; Kate Ching Ching ...; Leticia Azevedo S...; Lia Oliveira; Lindsay Ragsdale; Lino Nobili; Lisa Matlen; Luana Nosetti; Lucia De Zen; Luigi Ferini Strambi; Margaretha Stenma...; Maria Cecilia Lopes; Markus Blankenburg; Marta Rios; Mercedes Bernadá; Michael Farquhar; Michael Frühwald; Michael Gradisar; Narong Simakajorn...; Pierina Lazzarin; Poh-Heng Chong; Raffaele Ferri; Ricardo Martino-Alba; Robert L. Findling; Rosário Ferreira; Saadoun Bin-Hasan; Sapna R. Kudchadkar; Sebastiano Mercad...; Sergio Amarri; Sharon Keenan; Silvia Noce; Simone Brasil de ...; Simone Fagondes; Sooyeon Suh; Stephen H. Sheldon; Thomas Sejersen; Tolga Atilla Cera...; Valerie Crabtree; Vincenza Castronovo
• Keywords: Milestone; Delphi Method; Expert opinion; Sleep medicine

/Background: Sleep problems constitute a common and heterogeneous complaint in pediatric palliative care (PPC); they often contribute to disease morbidity cause additional distress children adolescents their families, already facing the burden of life-threatening life-limiting conditions. Despite significant impact sleep problems, clinical evidence is lacking. The application general medicine recommendations appears insufficient address unique challenges PPC dimension terms variability, duration, comorbidities, complexity needs, particular features related hospice care. Therefore, we initiated an international project aimed at establishing multidisciplinary consensus. A two-round Delphi approach was adopted develop areas definition, assessment/monitoring, treatment PPC. After selecting panel 72 worldwide experts, consensus (defined as ≥75% agreement) reached through online survey. At end two voting sessions, obtained 53 based on expert opinion outlining diagnosis, particularly population. This study addresses need personalize medicine's setting its peculiarities. It provides first managing highlighting urgent for global guidance improve sleep-related this vulnerable population caregivers. Our findings represent crucial milestone that will hopefully enable development guidelines near future.