Caring burden and quality of life among the caregivers of people living with dementia – a cross-sectional study in Udupi district of Karnataka

• DOI: 10.1080/01621424.2023.2301417
• Publication Date: 2024-01-08T22:15:57Z
• Authors: Clarita Shynal Ma...; Rajeshkrishna Pan...; Ramesh Chandrababu; Vani Lakshmi R; Panambur Venkatar...; Judith Angelitta ...; Jyothi Chakrabarty; Debbie Tolson; Elsa Sanatombi Devi
• Keywords: Male; Adult; Aged, 80 and over; India; Caregiver Burden; Middle Aged; Cross-Sectional Studies; Caregivers; Cost of Illness; Surveys and Questionnaires; Quality of Life; Humans; Female; Dementia; Stress, Psychological; Aged

Dementia is a chronic disorder of the brain that affects cognitive performance. The caregivers of individuals with dementia experience a greater burden that affects their Quality of Life (QoL). This cross-sectional study conducted in India was designed to assess the caring burden and QoL among the caregivers of people with dementia, as well as to ascertain the relationship between QoL scores and burden. Our sample included 80 caregivers of people with dementia. Most of the caregivers (n = 59, 73.8%) had a higher level of caregiver burden. There was a negative correlation between caregiver burden scores and QoL. A higher level of caregiver stress and low QoL were experienced by caregivers of dementia patients. In developing countries like India, counseling, and education on home health care for people with dementia should be provided to reduce the burden and enhance the QoL of caregivers.