Experiences and understanding of apathy in people with neurocognitive disorders and their carers: a qualitative interview study

• DOI: 10.1093/ageing/afad031
• Publication Date: 2023-03-19T14:06:13Z
• Authors: Clare Burgon; Sarah Goldberg; Veronika van der ...; Rowan H Harwood
• Keywords: Apathy; Thematic Analysis; Neurocognitive

Abstract Background apathy, defined as reduced goal-directed activity, interests and emotion, is highly prevalent in neurocognitive disorders (NCDs). Apathy has important consequences for the individuals who experience it their carers, yet lived experiences of apathy this population are not well understood. Objective to explore how people with NCDs carers understand apathy. Method in-depth semi-structured interviews were conducted participants’ homes. Sixteen (dementia or mild cognitive impairment) 14 living four geographical areas England, took part. Interviews audio-recorded transcribed verbatim. Transcripts analysed using reflexive thematic analysis. Results themes generated: ‘Apathy Poorly Understood’; ‘Too much trouble: Mediating Effort Outcome’; ‘Preserving Identity Face Loss Capability Autonomy’ ‘Opportunity Exclusion’. Conclusion experienced an understandable response everyday struggle face preserve identity threats capability autonomy exacerbated by lack support opportunities. Social environmental modifications may help reduce In line previous qualitative research, challenges dominant view a neuropsychiatric symptom that excludes social–environmental context.