Children with home mechanical ventilation—Parents' health‐related quality of life, family functioning and sleep

• DOI: 10.1111/apa.15177
• Publication Date: 2020-01-19T07:11:32Z
• Authors: Åsa Israelsson‐Sk...; Carina Persson; Agneta Markström; Lena Hedén
• Keywords: Sleep; Cognitive skill

Abstract Aim Children requiring home mechanical ventilation (HMV) have grown in number and complexity. Parents of children with HMV are often responsible for the advanced homecare. This study explored health‐related quality life (HRQoL), family functioning sleep parents HMV. A secondary aim was to explore impact on HRQoL, selected potential determinants. Methods Questionnaires were completed by 45 mothers 40 fathers, 55 receiving identified via respiratory clinics Swedish national register oxygen treatment invited participate between December 2016 2018. Results There no differences fathers overall HRQoL or reports, although within physical ( P < .043) cognitive .009) dimensions found. One four reported moderate severe insomnia. The variability predicted mode an extent 45% 21%, respectively. Conclusion Sleep child's parental functioning. results underscore importance evaluating parents' being aware that invasive influences