Information needs and research priorities for fertility preservation in women with breast cancer: patients and experts’ perspectives

• DOI: 10.1111/ecc.13359
• Publication Date: 2020-11-16T04:50:13Z
• Authors: Alezandra Torres‐...; Lilisbeth Pereste...; Andrea Duarte‐Díaz; Ana Toledo‐Chávarri; Vanesa Ramos‐García; Yolanda Álvarez‐P...; Pedro Serrano‐Agu...
• Keywords: Oncofertility; Information needs; Delphi Method

Objective To identify the information needs and research priorities that women with breast cancer (BC), their families BC experts perceive on fertility preservation. Methods We conducted two Delphi-based studies through three online rounds. The first was aimed to needs; second one assess importance of those third obtain consensus, defined as an interquartile range ≤2. Results participation rate 76.2% in study 1 53.7% 2. most important were referral protocol, pregnancy options for BC, side effects tamoxifen menopause a consequence treatment. different health professionals provide oncofertility information, protocols efficacy safety FP options. Conclusion Information about preservation context ways get pregnant, considering risks benefits, has emerged unmet need patients careers. participatory coordinated approach provision been agreed. Other are described attempt focus future necessary areas.