Experience‐based co‐design—Adapting the method for a researcher‐initiated study in a multi‐site setting

• DOI: 10.1111/hex.13028
• Publication Date: 2020-02-11T14:51:26Z
• Authors: David K. Raynor; Hanif Ismail; Alison Blenkinsopp; Beth Fylan; Gerry Armitage; Jonathan Silcock
• Keywords: Co-design

Experience-based co-design (EBCD) brings patients and staff together to services. It is normally conducted in one organization which initiates implements the process. We used traditional EBCD method with a number of adaptations as part larger research study British National Health Service.The primary aim was assess feasibility acceptability conducting research-initiated EBCD, enhance intervention development prior testing. As well embedding study, there were 3 further key adaptations: (a) working across secondary care sectors, (b) on multiple sites (c) incorporating theory-informed analysis.We recruited four (covering both care) and, each site, initial meetings, separate patient groups-followed by single joint patient-staff event, where priority areas for agreed. This event driven analysis, trigger film experiences. Each site worked area, groups met over 2-3 months design prototype tools. A second held (not usually undertaken single-site EBCD) they shared compared outputs. The team combined elements these outputs create an intervention, now being tested cluster randomized controlled trial.EBCD can be successfully adapted use entire pathway organizations process identify subsequent testing trial. Our pragmatic approach experience improvement co-designed directly reflected priorities.