Dementia care in European countries, from the perspective of people with dementia and their caregivers

• DOI: 10.1111/jan.12581
• Publication Date: 2014-11-27T07:26:46Z
• Authors: Staffan Karlsson; Michel Bleijlevens; Brenda Roe; Kai Saks; Maria Soto Martin; Astrid Stephan; Riita Suhonen; Adelaida Zabalegui; Ingalill R. Hallberg
• Keywords: OUTCOMES; best practice; RELATIVES; Focus Groups; 3. Good health; older people; Europe; HOME-CARE; 03 medical and health sciences; 0302 clinical medicine; nursing; Caregivers; informal caregiver; MANAGEMENT; focus groups; Humans; Dementia; HEALTH; NURSES; BURDEN; TRANSITION; dementia; INTERVENTIONS

To investigate persons with dementia and their informal caregivers' views of inter-sectoral information, communication collaboration throughout the trajectory care, in eight European countries.Living being next kin to a person means having live through stages that have different characteristics, needs, challenges requirements.Qualitative research. Focus groups were conducted England, Estonia, Finland, France, Germany, The Netherlands, Spain Sweden.Persons caregivers (N = 137) participated focus group interviews during 2011. Content analysis generated tentative model for people caregivers, which was then tested.The core finding be focused on caregivers. Entering into disease its consequences addressed as an important point departure. relation professional care required establishing trusting relationship, tailor-made intervention single or organization contact. Professional knowledge commitment, variation service adapted needs important.As is dyadic approach seems most suitable care. A relationship specific contact seem indicators best practice, does adaptation caregiver.