Perspectives of New Family Caregivers of a Relative With Early‐Onset Dementia: A Grounded Theory Study

• DOI: 10.1111/jan.16958
• Publication Date: 2025-04-11T10:48:27Z
• Authors: Li‐Min Kuo; Wei‐Chi Li Kao; Yeu‐Hui Chuang; Li‐Kai Huang
• Keywords: Family Caregivers

ABSTRACT Background Early‐onset dementia, also referred to as young‐onset affects people younger than 65 years of age. A diagnosis dementia is often not considered when patients with symptoms cognitive decline are < old, resulting in a delayed diagnosis. Therefore, family caregiving for persons early‐onset may differ from other dementias. Aim To explain the trajectory new caregivers before and after disease. Design This qualitative study was conducted grounded theory perspective. Methods Family recently diagnosed were recruited two medical centres northern Taiwan by combination purposive theoretical sampling inform explaining trajectory. Data collected face‐to‐face semi‐structured interviews. Interview data analysed constant comparative analysis; collection analysis ceased saturation reached. total 15 interviewed. Results The core theme describing process maintaining dynamic balance, which involved three interacting elements: (1) emotional reactions, (2) multitasking facing conflicts, (3) continual adjustments. helped find temporary but disease progression increased, adjustments required. Conclusion Maintaining balance allowed cope their emotions, juggle responsibilities associated role, adjust dementia. Impact findings describe spouse or parent elements used achieve could help mental healthcare nurses educate on how communication provide them information more practical support needed. Patient Public Contribution No public contribution. Reporting Method COREQ (COnsolidated criteria REporting Qualitative research).