Mortality in people with intellectual disabilities in England

• DOI: 10.1111/jir.12314
• Publication Date: 2016-08-03T02:36:53Z
• Authors: G. Glover; R. Williams; P. Heslop; J. Oyinlola; J. Grey
• Keywords: Adult; Male; Adolescent; Life expectancy; International comparisons; Intellectual disability; 610; Cause of death; Young Adult; Cause of Death; Intellectual Disability; Humans; 0501 psychology and cognitive sciences; Registries; Mortality; Child; Aged; Aged, 80 and over; 05 social sciences; Infant; Middle Aged; 3. Good health; England; Child, Preschool; Female

Abstract Background People with intellectual disabilities (IDs) die at younger ages than the general population, but nationally representative and internationally comparable mortality data about people ID, quantifying extent pattern of excess, have not previously been reported for England. Method We used from Clinical Practice Research Datalink database April 2010 to March 2014 (CPRD GOLD September 2015). This source covered several hundred participating practices comprising roughly 5% population England in period studied. General practitioner (GP) records identified diagnosed by their GP as having ID. Linked national death certification allowed us derive corresponding without overall cause. Results Mortality rates ID were significantly higher those without. Their all‐cause standardised ratio was 3.18. life expectancy birth 19.7 years lower Circulatory respiratory diseases neoplasms three most common causes them. Cerebrovascular disease, thrombophlebitis pulmonary embolism all had ratios greater 3 has described before. Other potentially avoidable included epilepsy (3.9% deaths), aspiration pneumonitis (3.6%) colorectal cancer (2.4%). Avoidable analysis showed a proportion deaths classified amenable good medical care preventable compared International comparison areas which published sufficient detail calculation directly suggest may Canada Finland, Ireland or State Massachusetts USA. Conclusions National provides basis public health interventions. using identify could provide comprehensive population‐based monitoring England, unbiased circumstances illnesses death; date information governance constraints prevented this. However, GPs currently only around 0.5% suggesting that individuals mild, non‐syndromic are largely missed. Notably control cardiovascular risk factors, dysphagia, management thrombotic risks screening important promotion initiatives.