Involving and Engaging People With Learning Disabilities in the DECODE* Research Project (*Data‐Driven Machine‐Learning Aided Stratification and Management of Multiple Long‐Term Conditions in Adults With Intellectual Disabilities)

• DOI: 10.1111/jppi.70004
• Publication Date: 2025-03-12T01:03:34Z
• Authors: Amy Faull; Sarah Rabbitte; Reza Kiani; Gyuchan Thomas Jun; Sonal Kuchadia; Heidi Neville; Amar Jobanputra; Satheesh Gangadharan
• Keywords: Stratification (seeds)

ABSTRACT Some groups of people are underserved in research. This means that they do not take part research as much should. People with learning disabilities often There lots reasons for this, such researchers knowing how to (1) make easy understand disabilities, (2) communicate well them and (3) hold meetings places can access easily. paper talks about the DECODE project included Patient Public Involvement (PPI) which meant were able share their ideas team. four PPI DECODE: two family members carers. Members from local disability networks joined groups. Easy Read information leaflets posters used support join project. We adjustments so could keep coming Regular held taxis be booked people. had training updates work was helping involved start project's design. They supported us told what difficult understand. when reasonable made time get know individually.