Survey of data collection methods and retention strategies in European birth cohorts of children and adults born very preterm

• DOI: 10.1111/ppe.12845
• Publication Date: 2021-12-27T15:51:54Z
• Authors: Raquel Teixeira; Julia Doetsch; Ana Isabel Freitas; Elsa Lorthe; Ana Cristina Santos; Henrique Barros
• Keywords: Attrition; Retention rate

The long-term follow-up of very preterm and low birthweight cohorts contributes to valuable evidence understand life-course outcomes in these vulnerable populations. However, attrition is a major challenge outcome studies. Examining the techniques used by existing may help reveal practices that enhance willingness continue participation over time.To evaluate effect data collection methods retention strategies on overall European birth individuals born birthweight.A survey integrated RECAP-preterm Consortium provided study characteristics, at most recent follow-up, strategies. Cohorts were classified according participants' age as child (<18) or adult (≥18 years old).Data obtained for 17 (81%) (7 10 child) 12 countries. Considering baseline, ranged from 10% 99%. Child presented higher median (68% versus 38% 52% with ≤5 >5 follow-ups) relatively more For contact invitation, mostly resorted invitation letters, face-to-face interviews assessments. Study duration was negatively correlated positively associated number evaluation. We identified 109 strategies, 6 per cohort; bond-building (n = 41; 38%) utilised, followed barrier-reduction 36; 33%) reminders 32; 29%). Retention not influenced category strategies.Regular cohort participants favour whilst neither nor categories seemed have an influence, suggesting tailored focussed risk dropout might be effective approach.