The perspectives of bereaved family carers on dying at home: the study protocol of ‘unpacking the home: family carers’ reflections on dying at home

• DOI: 10.1186/1472-684x-11-23
• Publication Date: 2012-11-22T21:14:32Z
• Authors: Sheila Payne; Sarah Brearley; Christine Milligan; David Seamark; Carol Thomas; Xu Wang; Susan Blake; Mary Turner
• Keywords: Thematic Analysis; End-of-Life Care; Unpacking; Family Caregivers

Recent end of life care policy prioritises patient choice over place and in particular promotes dying at home. This is predicated on the assumption that there are family carers able willing to provide for person. Through accounts bereaved members, 'Unpacking home' study aims gain an in-depth understanding 'home' issues faced by members caring a older person home; it also examine way home transformed process providing care, offer critical analysis policies aim increase deaths. paper presents protocol this study. A cross-sectional qualitative has been designed achieve aims. In-depth interviews will be conducted north south England with 50 elicit their witnessing (50+ years). All subjected thematic analysis, narrative undertaken subset 30 interview transcripts. final phase integration towards User involvement integral study, service users actively engaged every stage. seek take approach explicitly recognising central experience people, they have needs may amenable support anticipatory planning. The strengths which include its interdisciplinary participatory approach, data collection methods, explored. limitations challenges research considered. seeks make recommendations ensure receive appropriate adequate loved ones life.