Identifying specific social challenges of rare diseases: current challenges and issues

• DOI: 10.1186/1750-1172-9-s1-o29
• Publication Date: 2014-11-11T12:03:29Z
• Authors: Dorica Dan; Raquel Castro
• Keywords: Rare disease

Background EURORDIS Care Survey program conducted with over 12000 patients in 23 countries (2002-2008) has concluded that «social security systems are usually designed around common diseases and not flexible enough to take into consideration unprecedented health needs» [1] provided a few insights rare (RD) families social challenges. Further data collection literature review is needed order assess more accurately these